When Life Gives You Raspberries Podcast Por Cavernoma Alliance UK arte de portada

When Life Gives You Raspberries

When Life Gives You Raspberries

De: Cavernoma Alliance UK
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Welcome to when life gives you raspberries - the cavernoma podcast where we discuss all things cavernoma! Join hosts Ailsa & Jade as they discuss all the things that aren’t usually spoken about - from specific symptoms and what it’s like to experience them, to the day-to-day struggles that come with having a cavernoma. They'll be opening up about their own cavernoma stories and chatting to special guests about their expertise and experiences. They’ll also be answering any questions you have about living with cavernoma - so if you do have any questions just email podcast@cavernoma.org.uk.© 2024 When Life Gives You Raspberries Higiene y Vida Saludable
Episodios
  • 4. The Two Cs: Communication & Connection, with therapist Robyn Hughes
    Jul 5 2023

    This month Ailsa and Jade are joined by CAUK therapist and friend Robyn Hughes to discuss all things therapy, and learning to cope living with and caring for cavernoma. 

    In this episode, guest Robyn generously shares her own personal and professional experience of rare disease and living with illness in the family, and talks us through how a therapy relationship can be so helpful. 

    Don't forget to subscribe to 'When Life Gives You Raspberries" and leave us a review.  If you have questions, comments or feedback please email podcast@cavernoma.org.uk

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    47 m
  • It's Epilepsy Week!
    May 24 2023

    It's National Epilepsy Week!

    To mark this important awareness week, Ailsa & Jade sat down to discuss their experiences of seizures and epilepsy as a result of cavernoma. 

    They also bust some of the most common myths surrounding the condition.

    Epilepsy Action website: https://www.epilepsy.org.uk/
    Epilepsy Society website: https://epilepsysociety.org.uk/

    Thanks for listening! Don't forget to subscribe to our podcast to be kept up to date on all of our brand new episodes!

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    59 m
  • 2. Cavernoma & Me: What it's like to live with cavernoma
    Apr 24 2023

    Welcome back to another episode of 'When life gives you raspberries' - a podcast all about cavernoma. 

    This week hosts Ailsa and Jade discuss what it's like to live with their cavernomas, chatting about the different stages of recovery, the uncertainty that comes with cavernoma and how it can impact every part of life.  

    They also share some of their top tried and tested tips and advice for living with cavernoma. 

    Get in touch with Ailsa & Jade to ask a question or share your story by emailing podcast@cavernoma.org.uk or follow Cavernoma Alliance on social media @cavernomauk

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    1 h y 1 m
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