• What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

  • May 2 2025
  • Duración: 37 m
  • Podcast

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

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  • Resumen

  • This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

    Event Alerts:

    Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

    Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

    Philly Proud Stutter Gathering – May 19

    Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

    And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!



    Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content

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    Privacy & Opt-Out: https://redcircle.com/privacy
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