• What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

  • Apr 25 2025
  • Duración: 32 m
  • Podcast

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

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  • Resumen

  • Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

    This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

    Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

    If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.



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