• Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

  • De: Susan Newman Manfull PhD
  • Podcast
Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders Por arte de portada

Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

De: Susan Newman Manfull PhD
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  • Resumen

  • Hello and welcome to Untangling PANDAS & PANS, a podcast about two relatively unknown medical disorders characterized by the sudden and dramatic onset of obsessions and compulsions, vocal or motor tics, or restricted eating behavior -- and a whole host of other symptoms -- following strep or other bacterial or viral infection. Sometimes overnight. I have the privilege of interviewing some of the top researchers and clinicians in the rapidly growing field of Infection-Associated, Immune-Mediated Neuropsychiatric Disorders. That’s a mouthful of words that encompasses the strangely named disorders, PANDAS and PANS.

    My name is Dr. Susan Manfull. I am a social psychologist, the Executive Director of The Alex Manfull Fund, and the mother of Alex Manfull, who died at 26 years old due to PANDAS, a neuropsychiatric disorder my husband and I knew next to nothing about, certainly not that our daughter could die from it.

    PANDAS is an acronym for “Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus.” This disorder, first defined in 1998 at the National Institute of Mental Health, describes the acute and dramatic onset of obsessions and compulsions and/or motor or vocal tics as well as a whole host of neuropsychiatric symptoms in temporal association to a Group A streptococcal infection. PANS, which stands for Pediatric Acute-onset Neuropsychiatric Syndrome, refers to a similar symptom presentation -- with obsessions and compulsions or restricted eating being the cardinal symptoms -- due to a broader category of triggers (typically bacterial or viral infections). Both are thought to stem from a dysregulated immune system, probably leading to an over-production of autoantibodies and concomitant excess brain inflammation, particularly in the basal ganglia.

    Symptoms vary from person to person and range in severity from mild to severe, and generally have a relapsing and remitting course. With early recognition and correct treatment, these disorders can be successfully treated. Today, it is no longer viewed as a diagnosis limited to the pediatric population.

    Please stay tuned after each episode to listen to a one-minute public service announcement about PANDAS & PANS and The Alex Manfull Fund. To learn more, please visit our website: TheAlexManfullFund.org.

    This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.
    © 2024 Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders
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Episodios
  • S1 E3 Part 1: What Do Tick-Borne Illnesses Have to Do with PANS?

    S1 E3 Part 1: What Do Tick-Borne Illnesses Have to Do with PANS?
    May 26 2024

    Dr. Shannon Delaney, a psychiatrist with expertise in PANDAS/PANS, Lyme, and other vector-borne diseases, talks with Susan Manfull about how these complex disorders present in children and adults. Much of what she came to learn about Lyme came from her work with Dr. Brian Fallon at Columbia University.

    After her residency at Harvard Longwood Psychiatry Residency Program, she moved to New York-Presbyterian/Weill Cornell Medical Center and Presbyterian/Columbia University Irving Medical Center and, eventually, rose to become the Director of Child and Adolescent Evaluation at the Lyme and Tick-Borne Disease Research Center at Columbia University. Currently, Dr. Delaney has a private practice in New York City.

    Dr. Delaney's work falls into the relatively new and emerging field of immunopsychiatry in which psychiatric disorders are viewed through a lens that examines the role of infections and the immune system in the development of neuropsychiatric symptoms.
    Learn what initial professional experiences led Dr. Delaney to become what might be described as a "medical detective."

    Episode 3 is divided into three parts: 1) Introduction and overview of tick-borne diseases; 2) diagnosis and treatment; and 3) a description of her soon-to-be-released study about the prevalence of Bartonella in patients diagnosed with Bartonella.

    Recorded May 13, 2024

    Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.

    Credits: Music by Kingsley Durant from his "Convertible" album

    To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org

    Follow us on:
    Facebook
    Instagram
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    57 m
  • S1 E3 Part 2: What Do Tick-Borne Illnesses Have to Do with PANS?

    S1 E3 Part 2: What Do Tick-Borne Illnesses Have to Do with PANS?
    May 26 2024

    In Part 2, the discussion with Dr. Shannon Delaney continues with a focus on the diagnosis and treatment of Lyme and other tick-borne diseases.

    Recorded May 13, 2024

    Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.

    Credits: Music by Kingsley Durant from his "Convertible" album

    To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org

    Follow us on:
    Facebook
    Instagram
    Más Menos
    30 m
  • S1 E3 Part 3: What Do Tick-Borne Illnesses Have to Do with PANS?

    S1 E3 Part 3: What Do Tick-Borne Illnesses Have to Do with PANS?
    May 26 2024

    In Part 3, the discussion with Dr. Shannon Delaney continues on her soon-to-be-released study in Frontiers in Psychiatry Journal about the prevalence of Bartonella in patients diagnosed with Bartonella.

    Recorded May 13, 2024

    Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.

    Credits: Music by Kingsley Durant from his "Convertible" album

    To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org

    Follow us on:
    Facebook
    Instagram
    Más Menos
    13 m
Enfermedades Físicas Hygiene & Healthy Living
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