[TheROAR #7] 2025 Project CASK Announces Calendar Of Events

We have an exciting year ahead, and look forward to sharing it with you! Listen in as Hitomi Kubo shares in more detail, on what’s to come in 2025…

Feb - Roar For Rare! Share how you’re Roaring for CASK and all rare diseases, and tag @projectcask! Social frames in multiple languages can be found here:

https://projectcask.org/#cask-gene-rare-disease-day

March - Meet Dr. Mingshan Xue, lead researcher of the CASK gene replacement therapy, the most proven gene therapy technique currently applicable for CASK. More info on the study:

https://www.youtube.com/watch?v=bftS7quS8DU&t=10s

May - The Ultra Rare Collection - Ultra Rare Art to Cure an Ultra Rare Disease. Our 2nd Edition of this online and in-person art auction is back with a new theme - The Mother of All Art Shows - art about motherhood, caregiving, and love.

https://www.ultrararecollection.com/

July - CASK Gene Awareness Day; let’s celebrate our Liocorns and honor those who remain in our hearts.

Aug - Make A Splash For CASK! Our 2nd annual peer-to-peer community-wide fundraiser. Join us in raising funds for research and showcase our Liocorns’ love for water! Renée Roquet’s community fundraiser:

https://www.instagram.com/p/C_EdkDlSSf3Yxblx_mpyz5TGCGu0bkvSp56wJo0/

Oct - CASK Family & Science Conference - Coming together as a community to learn, connect and find inspiration.

REMINDERS:

Please register for Citizen Health + Project CASK (takes 3 minutes!):

https://www.citizen.health/partners/project-cask

Update your Rare-X surveys here:

https://rare-x.org/cask/

CASK seizure study:

https://www.instagram.com/p/DF2lwMBSqam/

Make sure to register with Project CASK to stay in the know for all things 2025

https://www.tfaforms.com/5104302

We look forward to a promising 2025 together!