The Understanding ME/CFS Podcast Podcast Por Patrick Ussher arte de portada

The Understanding ME/CFS Podcast

The Understanding ME/CFS Podcast

De: Patrick Ussher
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Interviews with patients and experts on all things ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome), Long Covid, POTS, Fibromyalgia and other closely related illnesses. Accessible discussion of breakthrough research and treatments, quality of life improvements and even recovery stories.

Patrick Ussher, ME/CFS patient, is your host for this podcast. Patrick has had ME/CFS for seven years, has a YouTube channel ('Understanding ME-CFS') and is also author of the book Understanding ME/CFS & Strategies for Healing.

For all Patrick's links (personal website, YouTube, books, media etc), please follow https://linktr.ee/patrickussher

The Understanding ME/CFS Podcast is Turny:

https://www.turnto.ai/weekly-updates?fpr=patrick58

Copyright 2025 All rights reserved.
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Episodios
  • #7 - The Man Trying to Cure ME/CFS & Long Covid - Prof. Klaus Wirth Interview
    Sep 28 2025

    In this interview, I talk to Prof Klaus With, the man trying to create the world's first approved medication for ME/CFS & Long Covid (Mitodicure). 🧠 This 45-minute deep dive explores the groundbreaking research that led to the current development efforts of Mitodicure and Prof. Wirth’s unifying model of ME/CFS — created in collaboration with Prof. Carmen Scheibenbogen. We cover: 🔹 How Mitodicure is designed to heal the illness and not just suppress symptoms 🔹 Why it could significantly raise the PEM/crash threshold, improving quality of life but also allowing much deeper healing to occur (as PEM heightens and intensifies the illness) 🔹 What a patient might actually feel when taking the drug 🔹 Why drug-development-style research is vital to accelerate our understanding of ME/CFS pathophysiology 🔹 How the mystery of low blood volume in ME/CFS can be explained 🔹 How the Wirth and Scheibenbogen model accounts for muscle fibre necrosis during PEM This may be one of the most hopeful developments the ME/CFS and Long Covid communities have seen in years. 🙏 Please watch, share widely, and help raise awareness. The more visibility Mitodicure receives, the greater the chance of attracting investors for clinical trials — and, potentially, the possible breakthrough millions have been waiting for.

    To keep up to date with Prof Wirth's work, follow the Mitodicure website: www.mitodicure.com

    More about your host, Patrick Ussher

    For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher

    #MECFS #CureLongCovid #CureMECFS #Research #Medication #Mitodicure

    Intro music: The Path (piano & strings) by Patrick Ussher

    **Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

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    47 m
  • #6 - Finding a Meaningful Life with ME/CFS & Paralysis: Ray's Story
    Sep 25 2025

    In today's episode I talk to Ray about his story with ME/CFS and serious other health problems, including paralysis from motor axon neuropathy. Initially sick after exposure to a nerve agent, Ray has struggled with debilitating health problems for almost two decades. But how does he stay positive? How does he still try to take personal responsibility for his health? And what message does he have for the ME/CFS community?

    More about Ray Crowninshield

    YouTube Channel - https://www.youtube.com/@truemecfsuncensored1022

    More about your host, Patrick Ussher

    For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher

    #LongCovid #MECFS #Mindset #Positivity #

    Intro music: The Path (piano & strings) by Patrick Ussher

    **Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

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    1 h y 13 m
  • #5 - Fleury's Long Covid HBOT and Neuroplasticity Recovery Story
    Sep 22 2025

    Fleury Simons was severely ill with Long Covid for nearly three years — and is now fully recovered. In this interview, she shares the treatments and strategies that changed her life. After struggling with debilitating symptoms and little hope of improvement, Fleury travelled to the Aviv Clinics in Florida, where she completed 60 sessions of medical-grade hyperbaric oxygen therapy (HBOT). She explains how HBOT helped both her body and brain to recover, the role neuroplasticity and mindset work played in her healing, and the additional tools that supported her along the way. More about Fleury:

    https://fleurysimons.com/

    https://www.instagram.com/mylongcovidmission/

    More about your host, Patrick Ussher

    For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher

    #HBOT #MECFS #Hyperbaric #LongCovid #Recovery #Brainretraining

    Intro music: The Path (piano & strings) by Patrick Ussher

    **Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

    Más Menos
    55 m
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