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The Parkinson's Experience podcast

De: Sheryl Lowenhar
  • Resumen

  • The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don’t skip this one from the viewpoint of a patient. Thank you to my sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com
    2020 Copyright 17 Branches
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Episodios
  • 097 Benefits of Integrative Medicine
    Jun 18 2024

    What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease.

    Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time pursuing a fellowship in Integrative Medicine at University of Arizona. She will describe how clinicians can work together with the families of people with Parkinson’s to make for a better experience and a healthier outcome. She believes treatment should include prescribed exercise, a healthy diet and, possibly complimentary medicines.

    We had a great discussion. She opened my eyes to possibilities and the team approach to a better quality of life. If you like what you hear, let’s see if we can change the healthcare system together.

    https://www.vumc.org/neurology/person/britt-stone-md

    https://www.herbsociety.org/

    https://integrativemedicine.arizona.edu/health_hub/awcimagazine/what_is_integrative_medicine.html

    https://www.dbsandme.com/en.html

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    37 m
  • 096 Living with PD and Finding Love
    Jun 4 2024

    In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a diagnosis of Young Onset Parkinson's Disease (YOPD). It took another 4 1/2 years, and 2 1/2 months after Allison's divorce before she, too, was diagnosed with YOPD New Year's Eve of 2014.

    Allison went on to make history by becoming the first person with Parkinson's to compete on the popular TV show American Ninja Warrior. She began blogging, delivering motivational speeches, and advocating for single moms, women, and young adults with diseases.

    In May 2020, Steven, who had recently gone through a divorce, purchased property on a street named Allison. He intended to build a new home and embark on a fresh chapter of life with his children and his dog named Allie.

    In August 2020, one of Steven's friends sent him a blog post written by a stranger named Allison, sharing her experiences of "Dating With Parkinson's." Steven felt an inexplicable connection and decided to reach out to her. Two months later, in October 2020, the two finally met. Two years later the couple were married. They now reside on the very street named Allison, alongside Steven's dog Allie, their three children, a cat, a bunny, and a new puppy.

    In September 2022, the pair joined 10 other people with Parkinson's to run the Blue Ridge Relay, which is an arduous 208 mile relay through the Blue Ridge mountains, two states and more than 16,000 Feet of ascent.

    Then, in December 2023, one week before Christmas, the couple created a new spark between them, by both undergoing deep brain stimulation (DBS) surgery. The couple had brain surgery on the same day, by Baylor's Dr. Sameer Sheth and team, in the same operating room, in the same hospital, Baylor St. Luke's Medical Center back to back. It is now considered standard of care for people with PD that qualify to have DBS.

    Let’s check in with them and learn what it is like for the two PwP to live together and have surgery/recovery together.

    https://litwithin.com/

    https://www.youtube.com/watch?v=Xz0hlJ6mzD4

    https://www.dbsandme.com/en.html

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    38 m
  • 095 Parkinson's Stages Explained
    May 23 2024

    What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking the progression of the disease is, I think, important.

    So, today we are going to speak with a movement disorder specialist. He will explain the stages of Parkinson’s disease. What they are and what that means to individuals and their families. I think you will find this episode interesting and helpful.

    https://www.honorhealth.com/physicians/daniel-savitt

    https://www.parkinson.org/understanding-parkinsons/what-is-parkinsons/stages

    https://www.dbsandme.com/en.html

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    28 m

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