The POTScast Podcast Por Standing Up to POTS Inc. arte de portada

The POTScast

The POTScast

De: Standing Up to POTS Inc.
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Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.© 2021 Desarrollo Personal Economía Enfermedades Físicas Gestión Gestión y Liderazgo Higiene y Vida Saludable Éxito Personal
Episodios
  • Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments

    Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments
    Oct 12 2025

    Dr. Kendal Stewart comes from the a background in skull surgery and now specializes in looking for root causes of neuroimmune conditions like POTS, including looking at genetics and nutrigenomics. In this episode he discusses seeing 'hypo-adrenergic' POTS and the underlying genetics that may cause it, plus lots more on genetic testing, novel treatments such as exosomes, peptides and CBD, and much more. You can find Dr. Stewart at https://www.drkendalstewart.com/ or his podcast, Coffee with Dr. Stewart.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
    Más Menos
    50 m
  • Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

    Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing
    Oct 7 2025

    Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended: consult YOUR doctor about what's right for you**) treatments that he has tried, including HELP Apheresis, HBOT (hyperbaric oxygen therapy), a carnivore diet and more. He also shares why he wrote a book about "psychogenic drinking" that -- among POTS and ME/CFS patients -- may not be psychogenic after all.

    Patrick's website is here.

    His YouTube channel is here.

    You can follow him here. To put your name into the hat for the book giveaway, please follow this link https://patrickscribe80.gumroad.com/l/jrfbq There you will be able to download a free sample from the book by inputting your email. Under ’name a fair price’, just input ‘0’ to get the sample for free. This will also sign you up to Patrick’s newsletter but, if you would rather not subscribe to this, just indicate this clearly in the ’newsletter opt-out’ box. Three email addresses will be chosen at random two weeks after the podcast’s release date and winners will be contacted to arrange delivery of the book. You can also use the contact form on Patrick’s website and let him know you are entering the draw, if preferred.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
    Más Menos
    1 h y 7 m
  • Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert

    Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert
    Sep 28 2025
    Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on complex chronic illness, and how her clinic and programs now work to bring together resources and a multidisciplinary approach to helping children and teens with dysautonomia. Dr. Sivakoti also shares her thoughts on POTS, ME/CFS, complex illness, how the healthcare system needs to better help these patients and more. This is a great conversation with a very compassionate, thoughtful and knowledgable physician and researcher.

    More information about Dr. Sivakoti and her practice is here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
    Más Menos
    47 m
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Tanya I'm from Utah and was just dx. you're not alone! prayers & big hugs!

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