In this episode of The Cancering Show, Dr. JYP discusses the importance of cancer patients taking extra precautions during summer activities. She explains the sensitivity of chemotherapy patients' skin to sunburns and advises using mineral sunscreen and protective clothing. Dr. JYP also highlights the risks of swimming in certain types of water, the importance of proper head and hair care, and the need for hydration and avoiding strenuous activities in the heat. She offers other practical tips for those who are traveling, gardening, fishing and picnicking. Don’t worry; cancer patients can still enjoy most summer activities as long as they follow a few simple guidelines.

3 Key Takeaways


1. Sun Protection for Cancer Patients: Chemotherapy can make the skin more sensitive, increasing the risk of sunburn. Cancer patients should use a sensitive-skin, nontoxic sunscreen and wear SPF-protective clothing and hats to avoid sun damage, especially on areas such as the scalp and the tops of feet.

2. Hydration and Heat Protection: Cancer patients undergoing treatment are at a higher risk for dehydration and heat stroke. It's crucial to stay hydrated by consuming water and electrolyte replacement drinks, taking breaks in the shade, and watching for signs of fatigue. To prevent complications, avoid strenuous activities in extreme heat.

3. Food Safety for Cancer Patients: Chemotherapy can weaken the immune system, making cancer patients more susceptible to foodborne illnesses. Patients should avoid raw oysters and uncooked seafood, and other foods like cold cuts or mayonnaise-based salads that could harbor harmful bacteria, especially in a picnic setting. Prioritize fresh, well-cooked foods to reduce the risk of infections and illness.

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The Cancering Show is brought to you by USA Health Mitchell Cancer Institute. MCI is a cutting-edge cancer research and treatment center built to fight cancer smarter in Mobile and Baldwin counties in Alabama. Our researchers and clinicians focus daily on the struggle against cancer, serving a potential catchment population of more than 4.1 million people, with a singular focus of advancing cancer diagnosis, treatment, and prevention throughout the Gulf Coast and beyond with science, technology and hope.

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In this episode, Fred Neubauer, a stage 4 cholangiocarcinoma survivor, shares his inspiring journey with Dr. JYP. Fred’s rare bile duct cancer was discovered during imaging for a kidney stone. Facing a challenging diagnosis, he explored advanced treatments, including chemotherapy, radiation, and innovative clinical trials, which helped shrink his tumors. Despite the difficulties, Fred remains hopeful and proactive in managing his cancer. Dr. JYP emphasizes the significance of biomarker testing, which helped Fred access treatments tailored specifically to his cancer's characteristics. Fred discusses his advocacy work, highlighting how helpful it is for patients to access their medical records easily and participate in clinical trials to find the best possible care and advance the science for others.

Throughout the episode, Fred talks about maintaining a positive outlook and staying active in his hobbies, such as DIY projects and car restoration. The episode highlights how personal determination, along with medical advancements, can transform cancer treatment, providing hope and improving the quality of life for those diagnosed with rare cancers.

3 Episode Key Takeaways


1. Importance of Biomarker Testing: Fred Neubauer's conversation with Dr. JYP highlights the crucial role of biomarker testing in accessing targeted therapies that have significantly impacted his treatment for cholangiocarcinoma, a rare bile duct cancer. He emphasizes the need for cancer patients to pursue such testing to tailor treatments specifically to their genetic cancer profiles, which can lead to more effective disease management and better outcomes.

2. Value of Clinical Trials: The episode underscores the value of participating in clinical trials, especially for patients with rare and advanced stage cancers. Clinical trials offer access to the latest treatments and technologies, such as histotripsy and other targeted therapies that are not yet widely available but can be life-saving.

3. Support and Advocacy: Fred Neubauer's journey from receiving a dire prognosis to becoming an expert in his own care and a patient advocate serves as a powerful testament to the importance of support, education, and advocacy. His story inspires those who are Cancering to be proactive in their healthcare, seek out resources like the Cholangiocarcinoma Foundation, and engage in community and mentorship programs to improve their health and quality of life.

Fred's Resources

https://www.ciitizen.com/
https://www.genomicfocus.com/
https://cholangiocarcinoma.org/

fredneub@bellsouth.net

Show Overview


02:00 Fred, a five-year bile duct cancer survivor, shares his journey.

06:13 Stage 4 cancer, but tumors shrink.

08:02 Fred insists on biomarker testing for targeted treatment.

15:41 Genomic Focus helps find cancer clinical trials.

22:25 Fred values relationships with doctors and staff.

29:27 Fred's shares his hobbies as a DIYer, and celebrates his wife's birthday.

In the episode, Dr. JYP delves into the heart of living with, and beyond, brain cancer with Michelle Matthews. Michelle shares her husband Matt's journey with glioblastoma and how they remained hopeful throughout the diagnosis and treatment. Despite the challenges, they cherished every moment together and found solace in support from their loved ones and community. Michelle also stresses the importance of self-care and the role of caregivers in cancer treatment and survivorship. Dr. JYP emphasizes the significance of shared experiences and compassionate care in the cancer journey. Ultimately, the episode celebrates the tenacity of the human spirit in the face of cancer's challenges and offers support and guidance to those who are navigating the difficult terrain of cancer caregiving and grief.

3 Episode Key Takeaways


1. Cherish Every Moment and Seek Support:

Michelle Matthews emphasizes the importance of valuing the time spent with loved ones, appreciating every shared experience, whether big or small, and the significance of leaning on support systems while cancering. She shares her personal story, highlighting how focusing on quality of life and support, including from strangers, helped her and Matt navigate his terminal glioblastoma diagnosis. It's a poignant reminder of the power of community and the strength found in togetherness.

2. Navigating Grief with Self-Care and Connection:

The episode underscores the need for caregivers to take time for personal grief and recovery. Michelle reflects on her own coping mechanisms, such as dining with friends and journaling, and advises caregivers to watch out for negativity online. She found solace in connecting with others who faced similar losses, reinforcing that finding relatable support can be crucial for emotional well-being.

3. Advocacy and Informed Treatment Choices:

Michelle's story conveys a powerful message about patient advocacy and informed decision-making. Faced with a terminal diagnosis and limited treatment options, Michelle and Matt consulted with their beloved oncologist, who encouraged them to explore treatment at Duke University. The narrative encourages second opinions and clinical trials, highlighting the importance of staying informed and being proactive.

Show Overview

02:15 Unexpected love story blossoms from a workplace friendship.

03:39 Matt's lifelong connection to newspapering

07:28 Devastating news: brain tumor, possible glioblastoma

11:39 Michelle admires Matt's courage during his illness.

16:14 His oncologist encourages seeking second opinions.

19:53 Indulging in the little things improves quality of life.

24:12 Weekly dinners with a friend helps during tough times.

29:26 Avoid taking on others' emotional burdens.

32:17 Michelle felt lucky to work from home during Matt's treatment.

34:33 Michelle shares her reflections on grief.

37:30 Michelle and Matt's love story, and advice for others.