Talk Fragile X

De: Talk Fragile X
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  • Resumen

  • Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.
    Talk Fragile X
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Episodios
  • Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

    Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!
    Mar 23 2025

    I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!
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    21 m
  • The Raw Realities of Grief & More!

    The Raw Realities of Grief & More!
    Mar 14 2025

    Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!
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    20 m
  • A Fragile X Family’s Diagnosis Journey

    A Fragile X Family’s Diagnosis Journey
    Nov 25 2024

    It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!

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    34 m
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You are awesome thanks for all the info you give us, God Bless you and your family!!

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