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Take Care of Rare

Take Care of Rare

De: Takeda Belgium
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Timely diagnosis of patients with a rare genetic disease is a real challenge.

Through this podcast series, you will learn more about how we inform/support healthcare professionals to accelerate early detection.

This content is intended for healthcare professionals in Belgium and Luxembourg and is brought to you by Takeda Belgium.

This podcast series on Fabry Disease with 7 episodes has been co-created with your colleagues with focus on 4 areas:

1. Rare Diseases with Prof. Dr. David Cassiman:
a. episodes 1 : the importance of early diagnosis
b. episode 2: the referral trajectory

2. Cardiology with Prof. Dr. T. Robyns:
a. episode 3: Fabry Disease and the Heart

3. Nephrology with Dr. W. Terryn & Dr. G. De Schoenmakere:
a. episodes 4: Fabry Disease and the kidney #1
b. episode 5: Fabry Disease and the kidney #2

4. Neurology with Dr. D. Hemelsoet & Dr. J. Demeestere:
a. episode 6: Fabry Disease and the brain #1
b. episode 7: Fabry Disease and the brain #2


C-ANPROM/BE/FAB/0053 - February 2024

© 2025 Take Care of Rare
Enfermedades Físicas Higiene y Vida Saludable
Episodios
  • Navigating the transplant journey in transplantation and post-transplant care
    Oct 6 2025

    This special episode kicks off Takeda Belgium’s podcast series 'The Universe of Transplant Care', exploring the transplantation journey through expert and patient perspectives. While future episodes are intended for healthcare professionals, this first episode is publicly available to support and inform patients, caregivers, and anyone curious about the realities of transplant care.

    In this opening episode, we delve into the emotional, medical, and personal challenges transplant patients face. It’s a journey through a complex Universe of Transplant Care—one that involves physicians, caregivers, loved ones, and the patients themselves.

    Joining us for this conversation are:

    🔹 Prof.Dr. J. Maertens – Hematologist (UZ Leuven)

    🔹 Prof. Dr. K. Wissing – Nephrologist (UZ Brussel)

    🔹 Mr. R. Dubois – Transplant recipient and representative of the patient association Transplantoux

    🔹Host: David Naert - Transplant recipient and sports journalist (SPORZA)

    Together, they discuss:

    🔹 The medical and emotional journey of transplant patients, with a focus on maintaining and improving quality of life after transplantation.

    🔹 Post-transplant challenges, particularly the impact of infections and the importance of multidisciplinary care.

    🔹 Personal stories and shared experiences from both patients and healthcare professionals

    Whether you're a patient, caregiver, healthcare provider, or simply curious about transplant care, this episode offers valuable insights into the complexity of the transplant journey.

    #TransplantJourney #PatientCare #OrganTransplant #Takeda #Transplantoux #HealthcareSupport #TransplantAwareness

    References: Based on clinical experience of Prof. Maertens & Prof. Wissing and the personal experience of Mr. Dubois as a patient

    Website eurotransplant https://www.eurotransplant.org/region/belgie-nederlands
    Website Transplantoux: Home | Transplantoux - Connected for life

    C-ANPROM/BE/NON/0014 – June 2025 - R.E./V.U./E.R.: Takeda Belgium NV, Leonardo Da Vincilaan 7, 1930 Zaventem

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    42 m
  • The importance of early diagnosis
    Dec 15 2023

    Too many patients with a rare disease remain undiagnosed. Prof. Dr. David Cassiman, head of the metabolic center in UZ Leuven, shares his experience on the Rare Disease landscape in Belgium, with special attention for Fabry disease.

    Only 40% of Fabry patients are currently diagnosed in our country. Therefore, systematic screening in high-risk populations is advised for Cardiologists, Neurologists, and Nephrologists. Prof. Dr. Cassiman explains why it is so important.

    He also touches upon how Artificial Intelligence (AI) can add value in this domain. What can we expect now and in the future? Curious about the opinion of a Belgian expert? Listen to (t)his podcast!

    C-ANPROM/BE/FAB/0051 – November 2023
    C-ANPROM/BE/FAB/0044

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    14 m
  • The referral trajectory
    Dec 14 2023

    With over 6000 rare diseases, you as specialists often face challenges in identifying their symptoms and consequently offering the best patient care. Prof. Dr. David Cassiman, head of the metabolic center in UZ Leuven, elaborates on the symptoms of Fabry disease and explains which tests to perform in case of suspicion.

    How can a reference center in metabolic diseases help you and your patients in this diagnostic odyssey, and which are the treatment options for patients with Fabry disease? Do you wonder what the answers to these questions are? Listen to( t)his podcast!

    C-ANPROM/BE/FAB/0051 – November 2023
    C-ANPROM/BE/FAB/0045

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    11 m
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