Her vertebrae are shaped like footballs, and doctors told her parents she wouldn't live past the age of five. This week, we're joined by the incredible Natasha, who shares her story of living with Morquio Syndrome, a rare genetic disorder. She takes us on the journey of her "two lives": the one before and the one after a spinal stroke during a routine surgery left her paralyzed at 16. Despite the immense challenges, Natasha's story is filled with shocking humor, unshakable positivity, and unforgettable moments (like meeting Taylor Swift for her Make-A-Wish). This is a conversation about resilience, adaptation, and finding joy in the most unexpected places.

You can watch this entire episode over on YouTube.

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What does it feel like to get your dad back for a few beautiful moments of clarity, only to have dementia snatch him away again? This week, we're joined by our dear friend Haley for a powerful and vulnerable conversation about losing her father, the beloved musician Cyril McPhee, to Lewy Body Dementia. Haley opens up about the "trickster" nature of the disease, the profound experience of "pre-grieving" a parent who is still alive, and the beautiful legacy he left behind, known as "The Cyril Effect." This is a deeply moving look at grief, family, and the enduring power of love in the face of a devastating illness.

Check out the episode on YouTube to see some of Haley's incredible photos of her father in his final days: You can watch this entire episode over on YouTube!

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When six months is the best a doctor can offer, hope feels like a cruel joke. In this Breakdown edition of Sickboy, we dig into Pulmonary Arterial Hypertension (PAH)—a rare disease that once meant certain death but now has science flipping the script.

Through narration and three candid interviews, this audio doc traces PAH’s path from despair to possibility. Jane shares what it’s like to have her lungs hijacked in her twenties. Dr. David Langleben, who built Canada’s first pulmonary hypertension clinic, walks us through decades of grim prognoses. And Jamie Myrah of PHA Canada explains why delayed diagnosis is still PAH’s deadliest trick. But then comes the plot twist: a new therapy called Sotatercept, a treatment that doesn’t just slap a Band-Aid on symptoms but actually targets the root cause. For doctors who’ve watched patients run out of time, it’s nothing short of a game changer.

The Breakdown is a new addition to the Sickboy’s format! An audio documentary where we crack open one illness at a time and make sense of it with heart, humour, and the occasional “WTF.”

Shout out to PHA Canada! This first Breakdown proves that even in the heaviest stories, hope still gets the last word.

For more information on how you can help please visit https://www.phacanada.ca/

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