Reviving Parent Groups: The Old and New of Special Ed Advocacy

Welcome back to Don't IEP Alone! In this episode, host Lisa Lightner shares a heartfelt update from the thick of summer, reminding parents to communicate their children's special health needs—like temperature regulation—to their IEP teams. Lisa dives into some unique Pennsylvania special education history, spotlighting the origins of IEPs and the creation of "intermediate units" and local task forces that advocate for families. She reflects on her experiences leading one of these groups, the ongoing challenges in keeping parents engaged, and the vital role these task forces play in supporting special education.

This week, Lisa also shares her recent advocacy efforts, including an important conversation with her local Congresswoman about Medicaid and HCBS services. The big takeaway? Your voice matters—even if your district feels impossible to influence. Lisa encourages everyone to keep reaching out to policymakers because persistent advocacy does make a difference, especially as we head into a pivotal year for policy and representation. Stick around for practical advocacy advice, a dash of inspiration, and a reminder to check out the new Don't IEP Alone website for more tools and training. Stay cool and enjoy the episode!

Don't IEP Alone with Lisa Lightner, Special Education Advocate

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