Rare & Resilient: Crushing It With Healthcare Partnerships

This episode of 'Rare Candor' dives into the art of partnering with healthcare providers, especially relevant for those grappling with rare diseases. Featuring a chat with John Stadler, an MPA patient, the discussion highlights the emotional ups and downs of forming these critical partnerships. The episode underscores the importance of mutual respect, listening, and emotional intelligence in doctors. Also, it presents the HEAT kit as a game-changer for patients, offering practical advice for navigating the healthcare maze. The conversation touches upon historical and gender disparities in medical research, reinforcing the need for patients to be well-prepared advocates for their health.