Pineal Stories Podcast Por Michael and Kelly Ables arte de portada

Pineal Stories

Pineal Stories

De: Michael and Kelly Ables
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Help Us Give a Voice to Pineal Cyst Sufferers – Support Our Awareness Podcast

🎙️ What We're Doing

We’re launching a powerful podcast series to give a voice to people suffering from symptomatic pineal cysts — a condition too often dismissed by the medical community.

Doctors say: “It won’t kill you. Just live with it.”

But those living with it know the truth: It can rob you of your quality of life — causing debilitating headaches, dizziness, vision problems, cognitive fog, insomnia, and even delusions.

It’s time to change the narrative.

🔊 Why It Matters

Most surgeons won’t operate. The medical system often ignores this condition. But what about the people who live in daily pain? Who can’t work, drive, or think clearly? Who are no longer themselves? Who are being dismissed over and over?

This podcast will spotlight their stories. Real people. Real suffering. Real urgency.

We aim to:

  • Interview patients from around the world
  • Bring on neurologists and surgeons willing to speak up
  • Share lived experiences that challenge the status quo
  • Build pressure for better treatment and recognition
Michael Ables 2025 Biografías y Memorias Ciencias Sociales Higiene y Vida Saludable Psicología Psicología y Salud Mental
Episodios
  • Emily B (Part 2): 20 Days Post-Op & a New Normal.

    Emily B (Part 2): 20 Days Post-Op & a New Normal.
    Sep 30 2025

    This two-part episode follows Emily through brain surgery for a symptomatic pineal cyst—first, immediate post-op reflections (days 1–4), then a rapid-fire follow-up just 20 days later. Emily and her mom share candid details about pain spikes, the “zipperhead club,” unexpected improvements (sensory issues, mood, empathy), and what “finding my new normal” looks like. We talk recovery curves, advocating with tumor boards, and why redefining “necessary” in brain surgery matters.

    💡 Resources & Links:

    • Visit our website: pinealstories.com
    • Learn more about pineal cyst symptoms and advocacy
    • Share your story or contact us: pineal.stories@gmail.com

    🎵 Credits:

    Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound

    📅 New episodes drop every Tuesday

    Follow, rate, and review to help us reach more people — because the truth deserves a mic.
    Más Menos
    50 m
  • Julia: Finding Voice, Validation & Community.

    Julia: Finding Voice, Validation & Community.
    Sep 23 2025

    In this episode of Pineal Stories, we sit down with Julia to hear her journey with a symptomatic pineal cyst. Julia opens up about her experiences navigating symptoms, seeking answers, and the challenges of finding support and understanding in the medical community.

    Her story highlights not only the physical impact of living with a pineal cyst, but also the emotional and mental toll it can take. Through resilience and persistence, Julia shares how she advocates for herself, builds community, and continues to search for solutions.

    This conversation is a reminder that no one is alone in this journey—and that every voice adds to the growing awareness around pineal cysts.

    This episode also includes a very special guest!

    💡 Resources & Links:

    • Visit our website: pinealstories.com
    • Learn more about pineal cyst symptoms and advocacy
    • Share your story or contact us: pineal.stories@gmail.com

    🎵 Credits:

    Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound

    📅 New episodes drop every Tuesday

    Follow, rate, and review to help us reach more people — because the truth deserves a mic.
    Más Menos
    1 h y 11 m
  • Dr. Teo: Why Some Pineal Cysts Are Symptomatic.

    Dr. Teo: Why Some Pineal Cysts Are Symptomatic.
    Sep 16 2025

    Neurosurgeon Dr. Teo joins Michael and Kelly to challenge the “pineal cysts are always asymptomatic” dogma. He recounts the serendipity that led him to operate, why some patients improve after surgery, and how mechanical explanations (aqueduct and venous compression) can account for headaches, neuro/visual issues—and even severe psychiatric symptoms. Dr. Teo also discusses peer pushback, litigation fears, and the need for careful consent with a skilled pineal-region surgeon. The conversation acknowledges alternate hypotheses (including hormonal theories), highlights progress since the Human Connectome Project, and shares practical guidance for patients seeking help.If you’ve been told “it’s all in your head,” this one is for you.

    💡 Resources & Links:

    • Visit our website: pinealstories.com
    • Learn more about pineal cyst symptoms and advocacy
    • Share your story or contact us: pineal.stories@gmail.com

    🎵 Credits:

    Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound

    📅 New episodes drop every Tuesday

    Follow, rate, and review to help us reach more people — because the truth deserves a mic.
    Más Menos
    42 m
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