Patients as Partners Caregiver Keynote - The Life-Changing Power of a Clinical Trial

Summary:
In this podcast, recorded at the 2025 Patients as Partners in Clinical Research conference, patient advocate and caregiver Dr Justin Hopkin, University of Rochester, describes his family's journey before, during and after his son was diagnosed with a rare, life-threatening disease.

Dr Hopkin talks about the process of getting a diagnosis, the critical role of a clinical trial for his son, the impact on his other children, and his advice for medicine developers and clinical trial designers.

For more information, go to PatientsAsPartnersConference.com