Parenting with Chronic Illness: Finding Your Path

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Chronic illness doesn't come with a parenting manual. That's why this conversation with Rebecca (the Chronically Resilient OT) feels like a breath of fresh air for anyone trying to raise children while managing their own health challenges.

"Perfect is the enemy of done," Rebecca reminds us, cutting straight through the guilt that plagues so many parents with chronic conditions. Drawing from her unique perspective as both an occupational therapist and someone living with chronic illness and neurodivergence, she offers practical wisdom that goes beyond typical advice. Rather than focusing on what parents "should" do, she helps reframe priorities around what's genuinely meaningful.

What happens when your sensory needs clash with your child's? How do you explain to a four-year-old why they can't jump on your back? When should you tell children about your illness, and how? Rebecca tackles these questions with compassion and clarity, emphasising that talking openly about disability (in age-appropriate ways) creates safety for children who intuitively sense when something's wrong.

The practical strategies she shares—from energy accounting to different types of rest—offer a roadmap for parents struggling to balance their health needs with family responsibilities. Perhaps most powerful is her permission to outsource what you can and adapt expectations: "There's no moral failure in outsourcing. It doesn't mean you're a bad person or a bad parent if you're not able to do the grocery shopping or the laundry or all of the cooking."

This conversation will leave you with a transformative realisation: what your children will remember isn't the three loads of unfolding laundry—it's the five minutes spent working on a puzzle together, the board game played in pyjamas, the authentic connection that happens when we let go of perfection and embrace the reality of our limitations.

You can find Rebecca on:

Facebook: https://www.facebook.com/thechronicallyresilientot

Website: https://www.chronicresilienceot.com/

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I'm Liz, The Untypical OT. I support parents and carers in additional needs and neurodivergent families with burnout, mental health and well-being. When we support parents, everyone benefits.

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