On the tip of my tongue - talking about Aphasia Podcast Por Jonathan Hirons and Rob Edwards arte de portada

On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

De: Jonathan Hirons and Rob Edwards
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Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2026 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk Biografías y Memorias Ciencias Sociales Economía Exito Profesional Higiene y Vida Saludable Psicología Psicología y Salud Mental
Episodios
  • Finding Words: AI and Aphasia

    Finding Words: AI and Aphasia
    Feb 9 2026

    Send a text


    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.

    00:00 Introduction to the Podcast
    00:21 Understanding Aphasia and AI's Potential
    01:03 Dr. Abi Roper on AI and Aphasia
    01:42 AI's Role in Simplifying Text
    02:39 Speech Recognition Challenges and Advances
    04:48 Jez Hodgkinson's AI App for Word Finding
    07:26 Chatbots and Human Conversation
    10:41 AI's Limitations and Hallucinations
    12:33 Visual Support and Multimodal Communication
    14:09 Robert Baldock Personalized Synthetic Voice
    17:03 Co-Designing AI Tools with People with Aphasia

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
    Más Menos
    19 m
  • Bridging the Gap: AI and Aphasia with Dr. Abi Roper

    Bridging the Gap: AI and Aphasia with Dr. Abi Roper
    Dec 29 2025

    Send us a text

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists.

    00:00 Introduction to AI and Aphasia
    01:18 Meet Dr. Abby Roper
    01:43 AI's Role in Assisting Aphasia
    03:13 Speech Recognition and Practical Uses
    05:25 Challenges and Limitations of AI
    27:07 The Future of AI in Therapy
    30:35 Conclusion and Resources

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
    Más Menos
    31 m
  • Understanding Aphasia: Personal Stories and Community Support

    Understanding Aphasia: Personal Stories and Community Support
    Dec 9 2025

    Send us a text

    In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.


    00:00 Introduction to the Podcast

    00:38 Understanding Aphasia

    01:16 Chris's Journey with Aphasia

    01:42 Lisa's Role and Contributions

    02:06 Chris's Aphasia Groups

    04:58 Lisa's Connection to Say Aphasia

    06:56 Challenges and Solutions in Aphasia Care

    10:36 Group Activities and Social Impact

    14:52 Transport Issues and Community Support

    22:06 Raising Awareness and Future Goals

    24:49 Conclusion and Resource

    https://www.sayaphasia.org/worcester

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
    Más Menos
    26 m
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