Morgellons: We Medusa

Crystal breaks a four year streak of funny to bring you this raw, unvarnished episode of the exquisite and rarified pain that is Morgellons disease

Thank you!

Crystal, you just showed that you have the same feelings about this, as I do, and so many do. I first heard the “M” word in 2008 while trying to find out why a patch on my forehead kept peeling and wouldn’t heal. Ni removed a dead peice of “skin” off it, and there was a big black chunk under it- no mistaking it. So I would love to talk to you, sometime! We have a great deal in common. The lip issues and how that’s going- and a LOT. I COUNT ON HUMOR TO GET ME THRU IT! You’re the one who is so funny and entertaining, while discussing such a serious subject, (when I’m off that stage!). Thats what gets me thru a lot, is just a crazy sense of humor. About 3 months ago, I woke up to go pee? And was noticing that my hair was really annoying me- and woke up enough to see it waving around, and getting into my eyes and mouth- almost like it was trying for that! I never noticed my hair moving, before that. There was no fan or air conditioner on- anyway wouldn’t it all move if that was it?🤷‍♀️. This shit will wear a person down, but I plan to remain strong and positive and funny and a good human, while I’m here. If I were not born with a smile on my face and a song in my ❤️, this would be way harder- it’s plenty hard, anyway. I hear the same thoughts in you, now. Like you, well first I will look hard for any logical explanation for all this! Then, I take in all the theories and think them thru, but bottom line, I don’t know what the heck this is or where it came from, or even how long I was walking around with it, unnoticed. I do know it’s so real and so bizarre and so provable, in my extreme case. And it takes so much time, just trying to go anywhere and just pass…. Just look normal. You don’t know what you will wake up to. Go to sleep with (finally) a clear face- get up to the same sores you had 2 years ago, festered up with chunks of. Black crap hanging out. Frustrating! And I didn’t even touch it, never mind pick at my face that night? Happens all the time. Dig in and be strong cuz we need you. And your allowed those moments- we are here for you. My scariest thought is “will I die with this shit? Because at least I feel I have the right to know what the fuck has taken over, and where it came from!” Have u looked at yourself under a black light? I know it’s not good for your eyes but my pupils glow wierd green unlike other people that I’ve seen under the uv- it’s scary. Hang in there, girl! How can I speak with you, sometime? I’d love that! Thank you for being so brave and fearless and funny and warm- and just know you are loved and cared about by so many! ❤️