Lucas: Epidermolysis Bullosa Simplex

Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.

Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.

In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering.

He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability.

The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.

#Epidermolysis Bullosa

#disability awareness

#chronic pain

#personal experiences

#skin conditions

#empathy

#healthcare

#living with disabilities

#advice for patients

#rare diseases