Life After the NICU: Oakley’s NICU Story | Part 2

In this week’s podcast episode, we continue Emilee’s story as she shares what life looked like after Oakley’s diagnosis and their transition home from the NICU. Emilee opens up about navigating the unknowns of Oakley’s rare genetic deletion, making decisions about medical interventions like a G-tube and hearing devices, and adjusting to life at home with a medically complex baby. She also reflects on the learning curve of advocating for her son, finding confidence in her voice as a mom, and the ways her own childhood growing up alongside a brother with the same diagnosis has shaped her perspective.

Emilee shares vulnerably about the challenges of the early days at home, the importance of celebrating small wins after the NICU, and how she and her husband continue to prioritize their relationship while navigating the realities of medical parenting.

As you listen to Emilee’s story, we hope it reminds you that both grief and joy can exist at the same time, and that even in the most uncertain seasons, you are capable, resilient, and never alone.

To listen to part 1, listen here!

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