Leaning In: A Journey of Love, Resilience and Care EP19

November is Caregiver Awareness Month and, in this episode, Yulanda Brown and
Steve Mayo talk candidly about their IgAN journey and how staying centered on what
brought them together has helped them grow closer despite their struggles.
Yulanda's diagnosis came as a shock for both. The uncertainty and lack of information
about the disease left them grappling with fear and confusion.
There is a very definite learning curve that comes with becoming a caregiver/care
partner, Steve shares – it's about leaning in, learning about the disease, asking for and
accepting help, and realizing it's OK not to have all the answers. Consistently showing
up and being there through the ups and downs is what matters most. But to do so, you
have to take care of yourself so you can be present for and stay in sync with your loved
one.
The two speak openly about the unexpected emotional and physical strain on both
patient and care partner and how the dynamics of their relationship have shifted with the
diagnosis. Steve emphasizes the importance of communication, patience, and
understanding in his role as a care partner, while also acknowledging the personal
struggle that often accompanies it.
This episode is a must-listen for anyone affected by IgAN, especially caregivers and
care partners. Yulanda and Steve offer wisdom to others facing IgAN, reinforcing the
importance of staying connected, communicating openly and grounding themselves in
love. Their story is a reminder that while the journey may be long and challenging, it is
also filled with moments of deep connection, love and hope. Their commitment to each
other and to the IgAN community offers inspiration and comfort to those facing similar
struggles.
Yulanda and Steve have been together for over 38 years and celebrated their 36th
wedding anniversary on November 5, 2024. Together, they have four children and
seven grandchildren. Both are retired, Yulanda from Civil Service and Steve from Law
Enforcement. They enjoy spending quality time with family and friends capturing
moments that last a lifetime.
Both Yulanda and Steve talk about how the IgA Nephropathy Foundation has supported
them in their journey, helping them connect with others going through similar
experiences – offering empathy, understanding and a sense of belonging.

IgAN Support and Information