Summary

In this conversation, Brenda Snow shares her personal journey as a patient diagnosed with multiple sclerosis and discusses her book, 'Diagnosed: The Essential Guide to Navigating the Patient Journey.' She emphasizes the universal experience of navigating chronic illness, the importance of grief and acceptance, and the need for strong doctor-patient relationships. Brenda also highlights the significance of maintaining one's identity while caregiving and the power of storytelling in healing. The discussion concludes with advice for aspiring writers and the importance of sharing personal narratives.

Chapters

00:00 Introduction to Brenda Snow and Her Journey

02:49 The Universal Patient Experience

06:48 Navigating Grief and Acceptance

12:41 The Doctor-Patient Relationship

20:42 Identity and Caregiving

26:12 Finding Growth in Adversity

31:56 The Power of Storytelling

35:40 Advice for Aspiring Writers

Hosted on Acast. See acast.com/privacy for more information.

Keywords

TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness

Summary

In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the treatment, the subsequent negative effects she experienced, and the challenges of navigating the medical system. The conversation highlights the importance of patient advocacy, community support, and the role of technology in managing health. Jordan emphasizes the need for awareness and understanding of the risks associated with TMS and the importance of self-care and mindfulness in coping with chronic illness.

Takeaways

TMS is a procedure that uses magnetic fields to stimulate brain activity.

Jordan experienced significant negative effects from TMS, including brain injury symptoms.

Medical gaslighting is a common issue faced by patients seeking help.

Community support is crucial for those dealing with chronic illness.

Technology, including AI, can assist in managing health and communication.

Self-care and mindfulness are essential for coping with chronic illness.

Advocacy is important to raise awareness about the risks of TMS.

Family planning can be complicated by health issues and uncertainties.

Understanding the impact of chronic illness on daily life is vital.

The journey of healing is ongoing and requires patience and support.

Titles

The Hidden Risks of TMS: A Personal Journey

Navigating the Medical Maze: Jordan's TMS Experience

Sound bites

"I was called headache girl for a year."

"I want to share my story to help others."

"I have to protect myself and my energy."

Chapters

00:00 Introduction to TMS and Jordan's Journey

01:13 Understanding the Impact of TMS on Life

01:28 Introduction and Background on TMS

04:20 Understanding Trans-Cranial Magnetic Stimulation (TMS)

07:23 The Experience of TMS Treatment

10:20 The Impact of TMS on Daily Life

13:09 Medical Gaslighting and Patient Advocacy

16:13 The Journey to Recovery and Diagnosis

19:14 Community Support and Sharing Stories

22:18 The Decision to Create a Documentary

25:13 Advocacy and Future Goals

36:11 The Need for Scientific Understanding in TMS

40:42 Coping with Chronic Illness and Disability

44:52 Navigating Family Planning Amidst Uncertainty

52:54 Leveraging Technology for Brain Injury Support

59:42 Personal Growth Through Adversity

Hosted on Acast. See acast.com/privacy for more information.

Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin

Summary

In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses.

Keywords

epilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women’s health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility

Hosted on Acast. See acast.com/privacy for more information.