Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse

Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs).

We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care.

🌐 More about Ewan👇🏻

https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs

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🎧 Listen to the podcast 👇🏻

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📖 Chapters

00:00 Intro

14:30 Understanding Developmental and Epileptic Encephalopathies

17:57 Future of Seizure Tracking Technology

21:01 Collaboration Between Clinicians and Engineers

23:52 The Broader Impact of Epilepsy Beyond Seizures

00:00 Conclusion & Thanks

🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary

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