I'm Aware That I'm Rare: the phaware® podcast Podcast Por phaware global association arte de portada

I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast

De: phaware global association
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.globalCopyright 2021 phaware global association. All Rights Reserved. Enfermedades Físicas Higiene y Vida Saludable
Episodios
  • Episode 541 - Nicholas Kolaitis, MD

    Episode 541 - Nicholas Kolaitis, MD
    Oct 7 2025

    The Face of Addiction Isn’t Who You Think It Is

    Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension is now a nationwide and global crisis. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds, including sobriety, trial participation, and successful transplant.

    This Special Edition Episode Sponsored by: Johnson & Johnson

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
    Share your story: info@phaware.com @JNJInnovMed #PHawareMD     @UCSFHospitals @LungTxptMD
    Más Menos
    15 m
  • Episode 540 - Peter J. Leary, MD

    Episode 540 - Peter J. Leary, MD
    Sep 30 2025

    How Stigma Blocks Meth-PAH Treatment and How to Stop It

    Patients with methamphetamine-associated-PAH often arrive at clinics already carrying heavy shame. But shame shouldn’t be part of their medical history. In this compelling episode, Dr. Peter Leary explains how stigma—from both society and providers—can delay life-saving care. Learn how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population.

    This Special Edition Episode Sponsored by: Johnson & Johnson

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com #phawareMD @uwepidemiology @JNJInnovMed
    Más Menos
    18 m
  • Episode 539 - Vinicio de Jesus Perez, MD

    Episode 539 - Vinicio de Jesus Perez, MD
    Sep 23 2025

    The Hidden Epidemic: Meth and PH
    Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening.

    This Special Edition Episode Sponsored by: Johnson & Johnson

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
    Share your story: info@phaware.com #phawareMD
    @PHatStanford @Viniciodjperez @JNJInnovMed
    Más Menos
    21 m
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