I'm Aware That I'm Rare: the phaware® podcast Podcast Por phaware global association arte de portada

I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast

De: phaware global association
Escúchala gratis

Obtén 3 meses por US$0.99 al mes + $20 crédito Audible

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.globalCopyright 2025 phaware global association. All Rights Reserved. Enfermedades Físicas Higiene y Vida Saludable
Episodios
  • Episode 548 - Sophia Esteves
    Nov 25 2025

    Scars and Survival: Rebuilding Life After a Devastating Diagnosis

    After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
    Share your story: info@phaware.com

    Más Menos
    13 m
  • Episode 547 - Richard Channick, MD
    Nov 18 2025

    The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything

    From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
    Share your story: info@phaware.com #phawareMD #CTEPH @rchannick
    @UCLAHealth

    Más Menos
    8 m
  • Episode 546 - Jenny Yang, MD
    Nov 11 2025

    The One Type of PH You Can Actually Cure

    Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
    Share your story: info@phaware.com #phawareMD @UCSDHealth #CTEPH @JennyYangMD

    Más Menos
    13 m
Todavía no hay opiniones