Discover expert insights on kidney stone prevention and management in this podcast episode featuring a physician, dietitian, pharmacist, and patient. Learn about key kidney stone risk factors and explore how dietary adjustments can reduce stone recurrence. Experts discuss fluid intake strategies, medication considerations, surgical indications, and even unconventional questions about roller coasters’ impact on stone passage. Tune in for actionable advice, myth-busting discussions, and interprofessional perspectives.

On today's episode we heard from:

Melanie Betz, MS, RD, CSR, FNKF, FAND is a nationally recognized renal dietitian and the Founder & CEO of The Kidney Dietitian. She is a Certified Specialist in Renal Nutrition and a Fellow of both the National Kidney Foundation and the Academy of Nutrition & Dietetics. Melanie has published extensively on kidney stone prevention and nutrition, and has presented at numerous state, national, and international conferences on the topic. Through her clinical work, research, and educational outreach, she is dedicated to helping patients and professionals understand the critical role of diet in kidney health.

Mark Garofoli, PharmD, MBA, BCGP, CPE, CTTS is a Clinical Associate Professor at West Virginia University School of Pharmacy and a Clinical Pain & Addiction Pharmacist. With expertise in pain management, substance use disorders, and geriatric care, he brings both clinical and personal perspectives to kidney stone discussions. Mark has shared his experience through the Pain Pod podcast, PAINWeek presentations, and a published article detailing his own kidney stone journey.

Mary Raines, CRA is a retired clinical research associate with more than 30 years of experience in medical research. After learning she needed a kidney transplant, she dedicated herself to advocacy and now serves as a Patient Advocate with the National Kidney Foundation and other kidney health organizations. Mary brings both professional expertise and personal experience to her work, amplifying the voices and needs of people living with kidney disease.

Andrew Rule, MD, MSc is a Professor of Medicine and Consultant Nephrologist at the Mayo Clinic in Rochester, Minnesota. He divides his time between clinical care, research, and education, with a particular focus on kidney stone disease and its link to chronic kidney disease. Dr. Rule has published extensively on the epidemiology of kidney stones and provides specialized care in the Mayo Clinic’s nephrology stone clinic.

Bryan Tucker, DO, MS, FASN is an Assistant Professor of Medicine in Nephrology at Baylor College of Medicine, where he serves as a clinician educator teaching medical students, residents, and fellows while caring for patients in both inpatient and outpatient settings. He holds a master’s degree in nutrition from Columbia University and completed his nephrology fellowship at Yale. A Fellow of the American Society of Nephrology, Dr. Tucker has authored numerous peer-reviewed publications and book chapters and is an active contributor to The Kidney Commute podcast.

Additional Resources:

Kidney Stone Information

Earn CME Credit Here

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This NKF Live crossover episode features a discussion on shared decision making on medical treatment options for people with atypical hemolytic uremic syndrome (aHUS). Our faculty includes a patient expert and advocate -- the actor and Substack author, Taylor Coffman, as well as two nephrologists, Holly Koncicki, MD and Ramy Hanna, MD, an expert on aHUS. They’ll cover a range of topics, with a focus on how to work with your medical team to achieve the best outcomes in aHUS. This discussion provides valuable tips and information not only for people with aHUS, but for all others who wish to gain insight into how to work with the most effectively with their medical team.

In today's episode we heard from:

Taylor Coffman is an actor, writer, podcast-maker, and mother with pregnancy-triggered aHUS. As a performer, she can be seen in Silicon Valley, Feud: Bette and Joan, and Life In Pieces, among others. Following her remission, Taylor also started work as a patient advocate helping those with life-changing diagnoses. She’s a patient expert and the author of Rare Disease Girl substack, sharing her journey and life-navigation tools weekly

Dr. Ramy Hanna ia an Associate Professor of Medicine and Nephrology at the University of California Irvine. He’s a clinician-educator who’s devoted to patient education and research on kidney diseases like aHUS. Dr. Hanna is focused on working with underserved communities, as well as improving the diagnostic process and treatment outcomes for patients.

Dr. Holly Koncicki graduated from the Rutgers New Jersey Medical School and completed her Internal Medicine Residency and Fellowship training at the Icahn School of Medicine at Mount Sinai. She is triple board certified in Internal Medicine, Nephrology and Palliative Medicine and Hospice. She is one of a few physicians who has trained in an integrated program of Nephrology and Palliative Medicine and is part of a small group of experts in this field. Though she cares for patients with all types of kidney problems, her specialty is caring for older patients with kidney impairment. She is widely published and has spoken nationally on topics including decision making in advanced kidney disease and symptom management. Her research focuses on communication tools to improve communication between patients and providers around discussion of treatment options for kidney disease. In 2020, she was honored by receiving the Cullman Family Physician Communication Award. She prides herself in learning each patient’s narrative that she treats, so she can best understand how to care for them.

Additional Resources:

Learn More About aHUS

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GLP-1 medications like Ozempic were designed to treat diabetes—but they’re quickly becoming known for weight loss and possible kidney benefits. Kidney doctor Holly Kramer and kidney patients Patrick Gee, and Jane DeMeis, are here to break down what these medications are, how they work, and what people with kidney disease need to know.

In today's episode we heard from:

Holly Kramer, M.D., MPH, is a practicing nephrologist who conducts research connecting nutrition and kidney health. Her connection to the National Kidney Foundation was inspired by her mom, who was a dialysis nurse and helped create some of the first dialysis units in Northwest Indiana. Dr. Kramer finds being on the NKF Board important, because it is the largest, patient-centered organization focusing on kidney disease. Her long-term goal is to increase national funding for kidney disease research and to heighten awareness about chronic kidney disease.

Jane DeMeis became involved with the National Kidney Foundation when she was diagnosed in 2018 with stage 4 kidney disease. She is currently on home hemodialysis and the transplant waitlist. Ms. DeMeis was the Director of Education and Organizational Development for U R Medicine Home Care. Part of her responsibilities was working with clinicians in teaching them how to present education to patients. She also was the Chairperson of the Patient Family Centered Care program and worked with improving home care through patient advocacy. In 2018, Ms. DeMeis retired. She had been fighting CKD along with Psoriatic Arthritis for many years and needed to focus on her health. She currently serves as a member of NKF's Kidney Advocacy Committee, as an Ambassador for NKF's online communities, and also as a NKF Peer mentor. Her other volunteer activities include being on the Board of the Perinton Food Shelf and working with clients as the Lead Verifier. She and her husband sing with the Perinton Senior Chorus and enjoy working in their garden.

Patrick Gee is a Community Activist, fighting against systemic issues such as poverty, social and racial injustices, criminal justice reform, and education reform. Patrick worked for the Virginia Department of Corrections and the Virginia Department of Juvenile Justice, where during his time in service, he acquired several awards and recognitions. In April 2013, Patrick was diagnosed with Stage 3b End-Stage Kidney Disease (ESKD). He began doing Peritoneal Dialysis (PD) in December 2013. On April 21, 2017, Patrick received a kidney transplant. Patrick has been very passionate in his pursuit to speak on behalf of the underserved, undervalued, and disenfranchised communities of color. Because of this, he serves as an advocate and kidney patient expert for a number of organizations including the NKF, CMS, FDA, KHI, AKF, AAKP and HDU. Patrick was the 2025 winner of NKF's Celeste Lee Castillo Patient Engagement Award.

Additional Resources:

GLP-1 Receptor Agonists

NKF Supports Proposal to Expand Access to Weight-Loss Medications

Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.