• Global Advocacy at the Organizational Level

  • Feb 13 2025
  • Duración: 35 m
  • Podcast

Global Advocacy at the Organizational Level

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  • Resumen

  • On this episode of the Global Hemophilia Report, we speak with guests who are each pioneering hemophilia advocacy in their respective regions. The discussion highlights the pivotal role of data and patient storytelling in driving systemic change and policy advancements. The episode emphasizes how global collaboration and technological innovations are paving the way for more equitable hemophilia care worldwide.

    Guests:

    Harshal Kale, World Federation of Hemophilia

    Matthew Delaney, National Bleeding Disorders Foundation

    Megan Adediran, Hemophilia of Nigeria

    Senior Advisor: Donna DiMichele, MD

    Hosted & Written by: Patrick James Lynch

    Featured Advertiser:

    Sanofi

    Subscribe to the Global Hemophilia Report

    Show Notes:

    Connect with the Global Hemophilia Report

    Global Hemophilia Report on LinkedIn

    Global Hemophilia Report on Twitter

    Global Hemophilia Report on Facebook

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

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