Episodios

  • Evolution of Assistive Technology - Alisa Brownlee on ALS United Mid-Atlantic GOALS Podcast
    Mar 31 2026

    Alisa Brownlee recently marked 30 years of supporting the ALS community at ALS United Mid-Atlantic. In this GOALS Podcast, she highlights the many changes in assistive technology over the years and how this technology has grown and evolved to meet the communication needs of people with ALS.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    41 m
  • The Power of ALS Advocacy with PA State Representative Kyle Mullins - GOALS Podcast
    Mar 23 2026

    Pennsylvania State Representative Kyle Mullins joins the ALS United Mid-Atlantic GOALS Podcast to discuss his family's personal ALS story, advocacy wins for ALS care and research, connecting with other ALS families, and the power of using your personal story.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    33 m
  • Mission and Organization of ALS United with President and CEO Jerry Dawson - GOALS Podcast
    Mar 17 2026

    Jerry Dawson, President and CEO of ALS United, joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaboration within the ALS community, the growth and mission of ALS United, and the hope and promise in new research and technologies. Learn more about ALS United nationally at www.alsunited.org

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    33 m
  • Personal Mission to End ALS with Yentli Soto Albrecht, PhD - ALS United Mid-Atlantic GOALS Podcast
    Mar 10 2026

    Yentli Soto Albrecht, PhD, @searchforaselfcure joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family's genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she's learned, and how research can bring hope and motivation to all.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    37 m
  • Mental Health Care and ALS with Alair Altiero, PhD, LPC ALS United Mid-Atlantic GOALS Podcast
    Mar 3 2026

    Alair Altiero, PhD, LPC, provides mental health support for people with ALS and caregivers as part of the multidisciplinary team at Penn State Health Hershey Medical Center. In this GOALS Podcast, Alair discusses the man aspects of mental health, when and how she offers her guidance, handling burnout, and how stress impacts caregiving.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    34 m
  • BioBank and Tissue Donation with Jefferson Weinberg ALS Center - ALS United Mid-Atlantic GOALS Podcast
    Feb 24 2026

    Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atlantic care team.

    To learn more about their research, visit: https://www.jeffersonhealth.org/clinical-specialties/amyotrophic-lateral-sclerosis-care.html

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    37 m
  • Accessible Living Solutions with RJ Adler and Alisa Brownlee - GOALS Podcast
    Feb 16 2026

    RJ Adler with Wheelpad joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessible living solutions for people with ALS. In this episode, Alisa and RJ discuss how new technologies can help people by offering dignity and independence.

    Learn more about our programs and mission at www.alsmidatlantic.org

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    24 m
  • Commitment to Care with Director of Care Services Steve Spaulding, MA GOALS Podcast
    Feb 10 2026

    Director of Care Services Steve Spaulding, MA, joins the ALS United Mid-Atlantic GOALS Podcast to talk about the structure of our Care Services Department, the recent International ALS/MND Symposium, patient and family events, and more.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    39 m