Episode 47: Caring for a Loved One with Charles Bonnet Syndrome: Jo Hill's Story

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Jo Hill, who shares her experiences as a caregiver for her husband, Frankie. Frankie has been dealing with glaucoma for over 20 years and started experiencing CBS symptoms in December 2018. Jo discusses the challenges they faced, the path to discovering CBS through resources like Esme's Umbrella, and how they found support from Dr. Gary Cusick. She highlights the importance of patience, support groups, and finding activities that help manage symptoms. Additionally, Jo reflects on the role of family support and shares tips for other caregivers dealing with CBS.

Contact Jo at [e-mail]

Contact me at [e-mail]

For help with CBS call 1-704-389-0160

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [e-mail]

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [e-mail]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [e-mail].

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [e-mail]

The Charles Bonnet Syndrome Podcast Merchandise

https://cbsyndromepodcast.com/merchandise

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