Ep.#112: Austin 1st Foundation

We share how Austin’s life and a years-long search for answers led the Terlings to build a foundation for families facing rare disease. We dig into research partnerships, caregiver training, and the Aces for Austin golf scramble that turns community into impact.

• one in ten Americans affected by rare disease
• Austin’s UBA5 journey from birth to diagnosis
• the four pillars: research, awareness, change, support
• insurance gaps and noncovered equipment and therapies
• funding drug repurposing for UBA5
• support for UAB’s Undiagnosed Diseases Program
• Children’s of Alabama PICU expansion and COACHES training
• Aces for Austin event details and growth
• volunteer-run model and near net-zero event costs
• how stories personalize statistics and drive action

Austin1stfoundation.org