Naomi Brickell is the project director for Supported Decision Making New York. With a distinguished career focused on empowering people with developmental disabilities, she leads initiatives to present Supported Decision Making (SDM) as a recognized alternative to guardianship in New York. Naomi is known for her work in disability policy advocacy, supporting families through the complexities of disability services, and promoting inclusion within educational settings and communities. She holds a degree from the University of Scranton and a master’s in special education and secondary transition from the University of Kansas.

Nicole Hastings is a self-advocate and leader within the intellectual and developmental disabilities realm. Drawing from her lived experiences, she plays an active role in advocating for self-determination rights. As coordinator of self advocacy and community engagement at the Westchester Institute for Human Development, Nicole leverages her position to empower others. She is both an adaptive sports enthusiast and entrepreneur, running Creative Arts by Nicole, which inspires individuals with disabilities to explore their artistic talents and pursue entrepreneurship.

Episode Summary:

In this engaging episode of DSP Talk, host Asheley Blaise explores the transformative impact of Supported Decision Making (SDM) in enhancing autonomy and independence for individuals with developmental disabilities. Joined by Naomi Brickell and Nicole Hastings, two prominent advocates, the discussion delves into the nuances of SDM, contrasting it with traditional guardianship models and highlighting its potential to promote self-empowerment in the disability community.

Naomi Brickell explains the fundamental differences between guardianship and Supported Decision Making, underscoring how SDM prioritizes personal choice, autonomy, and the use of trusted support networks to guide decision-making. The episode challenges the misconception that guardianship is the only or safest option, revealing SDM’s role in fostering better decision-making and learning from mistakes. Nicole Hastings shares her personal journey with SDM, illustrating the importance of choosing supporters who respect individual autonomy and emphasizing the dignity of risk and the right to make independent choices, even if they lead to mistakes. As listeners engage with these dynamic stories, they'll gain a deeper appreciation for the principles of self-determination and inclusion driving this movement.

Key Takeaways:

• Supported Decision Making (SDM) is presented as a powerful alternative to guardianship, enabling individuals with disabilities to make their own informed choices with the support of chosen allies.
• Nicole Hastings discusses how her SDM journey is rooted in selecting trusted supporters to aid in complex areas like healthcare and finance, without relinquishing autonomy.
• Naomi Brickell emphasizes that guardianship often doesn't provide the safety families assume, contrasting it with SDM’s emphasis on intentional decision-making support.
• The conversation stresses the necessity for SDM to become a normalized approach in society, reducing the systemic barriers and stigmas faced by individuals with disabilities.

Resources:

· Supported Decision Making New York

· 17a Guardianship

· Senate Bill S7107B

Hosted on Acast. See acast.com/privacy for more information.

Joseph Macbeth: Joseph Macbeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), boasts over 40 years of experience in the intellectual and developmental disabilities field. He began his career as a direct support professional and has become a prominent leader in workforce advocacy. Joe has significantly contributed to the advancement of direct support initiatives, particularly in New York and has been pivotal in establishing NADSP as a national movement representing over 60,000 professionals. Among his notable achievements are co-authoring a presidential report on the direct support workforce crisis and developing the E-badge Academy. Additionally, he serves on various national boards and committees, including a presidential appointment to the President’s Committee for People with Intellectual Disabilities (PCPID).

Episode Summary:

In this 2-part episode of DSP Talk, host Ashley Blaise engages in a meaningful conversation with Joseph Macbeth, an influential figure in the field of direct support for individuals with intellectual and developmental disabilities. Joe shares insights from his extensive experience advocating for direct support professionals (DSPs), discussing the urgent need for policy changes that affect DSPs and their ability to provide essential services. He emphasizes the potential impact of impending Medicaid cuts and the importance of DSP-led advocacy to confront these challenges.

In an exploration filled with crucial insights, Joe Macbeth delves into significant policy issues facing DSPs today, highlighting the often invisible and undervalued status of these professionals. He elaborates on the profound effects of potential Medicaid cuts, advocating for direct support professionals to mobilize and advocate on their own behalf. Throughout the discussion, Joe underscores the vital role of DSPs in achieving quality care and the pressing need for proper recognition within the profession. The conversation further explores the necessity for systemic support, training, and direct involvement of DSPs in policy advocacy, emphasizing the role of personal stories in influencing legislative change.

Key Takeaways:

• Direct support professionals face potential setbacks due to proposed Medicaid cuts, which could impact both their livelihoods, and the quality of care provided.
• Joe Macbeth encourages DSPs to take charge and advocate for themselves, drawing a parallel to successful social justice movements led from within.
• Recognition and support for DSPs extend beyond monetary compensation to include career development, decision-making power, and strategic involvement in organizational processes.
• There is a critical need for a unique occupational classification for DSPs to ensure accurate workforce data, essential for informed policy decisions.

Notable Quotes:

1. "I see this as a social justice type of issue. People who support people with all types of disabilities need to be valued and respected as a true professional” – Joe Macbeth

2. "Honoring is a practice, not a performance." – Ashley Blaise

3. "Medicaid is not an entitlement. Medicaid feeds back into community and people with disabilities…contribute greatly to our communities." – Joe Macbeth

4. "Nobody's a good direct support professional on day one. It takes time to be a good direct support professional."– Joe Macbeth

Resources:

• National Alliance for Direct Support Professionals (NADSP)
• Advocacy Center
• Disability Policy Forum

Hosted on Acast. See acast.com/privacy for more information.

Joseph McBeth: Joseph McBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), boasts over 40 years of experience in the intellectual and developmental disabilities field. He began his career as a direct support professional and has become a prominent leader in workforce advocacy. Joe has significantly contributed to the advancement of direct support initiatives, particularly in New York and has been pivotal in establishing NADSP as a national movement representing over 60,000 professionals. Among his notable achievements are co-authoring a presidential report on the direct support workforce crisis and developing the E-badge Academy. Additionally, he serves on various national boards and committees, including a presidential appointment to the President’s Committee for People with Intellectual Disabilities (PCPID).

Episode Summary:

In this 2-part episode of DSP Talk, host Ashley Blaise engages in a meaningful conversation with Joseph McBeth, an influential figure in the field of direct support for individuals with intellectual and developmental disabilities. Joe shares insights from his extensive experience advocating for direct support professionals (DSPs), discussing the urgent need for policy changes that affect DSPs and their ability to provide essential services. He emphasizes the potential impact of impending Medicaid cuts and the importance of DSP-led advocacy to confront these challenges.

In an exploration filled with crucial insights, Joe Macbeth delves into significant policy issues facing DSPs today, highlighting the often invisible and undervalued status of these professionals. He elaborates on the profound effects of potential Medicaid cuts, advocating for direct support professionals to mobilize and advocate on their own behalf. Throughout the discussion, Joe underscores the vital role of DSPs in achieving quality care and the pressing need for proper recognition within the profession. The conversation further explores the necessity for systemic support, training, and direct involvement of DSPs in policy advocacy, emphasizing the role of personal stories in influencing legislative change.

Key Takeaways:

• Direct support professionals face potential setbacks due to proposed Medicaid cuts, which could impact both their livelihoods, and the quality of care provided.
• Joe Macbeth encourages DSPs to take charge and advocate for themselves, drawing a parallel to successful social justice movements led from within.
• Recognition and support for DSPs extend beyond monetary compensation to include career development, decision-making power, and strategic involvement in organizational processes.
• There is a critical need for a unique occupational classification for DSPs to ensure accurate workforce data, essential for informed policy decisions.

Notable Quotes:

1. "I see this as a social justice type of issue. People who support people with all types of disabilities need to be valued and respected as a true professional” – Joe Macbeth

2. "Honoring is a practice, not a performance." – Ashley Blaise

3. "Medicaid is not an entitlement. Medicaid feeds back into community and people with disabilities…contribute greatly to our communities." – Joe Macbeth

4. "Nobody's a good direct support professional on day one. It takes time to be a good direct support professional."– Joe Macbeth

Resources:

• National Alliance for Direct Support Professionals (NADSP)
• Advocacy Center
• Disability Policy Forum

Hosted on Acast. See acast.com/privacy for more information.

Anthony Pappas: A seasoned Direct Support Professional with over 15 years of experience, Anthony Pappas is deeply involved in the realm of self-directed services for individuals with developmental disabilities. His unique approach incorporates creative elements such as music, songwriting, and creative writing to foster personal development and achieve person-centered goals. A musician, recording artist, and published author, Anthony has a rich history of collaborating with families and participants to cultivate meaningful and empowering support systems.

Episode Summary:

In this episode of DSP Talk, host Asheley Blaise delves into the transformative world of self-direction with Anthony Pappas, a Direct Support Professional who has an innovative approach to person-centered care. This episode focuses on the intricacies and benefits of self-direction as people with developmental disabilities are empowered to make significant life choices about their care, supported by a close-knit team of family and DSPs. Anthony shares his insights from over 15 years in this field, emphasizing the importance of flexibility, mutual respect, and collaboration between DSPs, participants, and families.

Throughout the conversation, Anthony highlights how working closely with families changes the traditional DSP role, offering a more personalized approach to care. Terms like "self-direction," "collaborative teams," and "individualized goals" permeate the discussion as Anthony reflects on his innovative methods, such as using music to enhance vocabulary and creative expression. The discussion underscores the challenges and rewarding moments of self-direction, showcasing real-life examples that emphasize empowering choice and finding common ground in decision-making processes.

Key Takeaways:

• Self-direction thrives on collaboration, creativity, and respecting personal choice, with the participant's voice central to decision-making.
• Effective communication between families and DSPs is crucial for successfully navigating challenges and fostering growth in participants.
• Utilizing creative approaches like music can significantly enhance personal development and engagement of individuals being supported.
• Compromise and flexibility are necessary for achieving shared goals and maintaining productive relationships between families and DSPs.
• Anthony's experiences illustrate the transformative power of self-direction in instilling independence and confidence in participants.

Resources:

• Book: Gifts From the Autistic Community - by Anthony Pappas
• Listening Workshop: Listen and Unwind - Contact AMPappas620@gmail.com

Definitions:

• Participant – In this episode, participant refers to the person being supported in self-directed services.
• FI – Fiscal Intermediary is the agency of records. The FI handles DSP onboarding, payroll, mandatory training of DSPs and families, as well as Human Resources needs such as tax information and health insurance benefits for the DSP. The FI ensures that all DSPs on the participant’s team, as well as the participant’s budget, are compliant with the Office of People with Developmental Disabilities (OPWDD).

Tune in to the full episode to deepen your understanding of person-centered care and see firsthand how the DSP Talk series uplifts the invaluable work of direct support professionals. Stay connected for more conversations that inspire and inform.

Hosted on Acast. See acast.com/privacy for more information.

Tish Allcorn is an esteemed expert in the human services field, with a dedicated career spanning over seven years working with the Regional Centers for Workforce Transformation. She is instrumental in teaching DSP (Direct Support Professional) core competencies across New York State. Tish is known for her passionate advocacy for individuals with disabilities as well as the direct support professionals who assist them. She was active in the Be Fair to Direct Care campaign, she has also partnered with NADSP and actively participated in legislative advocacy. Tish holds a human service degree from Mohawk Community College. As a proud Navy brat, she is also a dedicated advocate for veterans.

Episode Summary:

In this episode of DSP Talk, host Ashley Blaise sits down with Tish Allcorn, a driving force in the human services arena, for a captivating conversation. Tish brings a wealth of knowledge from her work with the Regional Centers for Workforce Transformation, focusing on DSP competencies and advocacy for fair treatment of direct care professionals. She discusses the deep connections and impactful relationships that can form between those offering support and the individuals receiving it. Tish's insights offer a glimpse into the heart of disability support work and emphasize the importance of genuine connections.

This episode delves into core themes such as the significance of understanding and emotional connection in disability support work, exemplified through Tish's own experiences in both her professional and personal life. Listeners are treated to an engaging discussion that underscores the need for emotional presence—beyond mere procedural support. The narrative paints a powerful picture of how DSPs, by showing up with both their heart and hands, can meaningfully impact the lives of those they support. Tish also highlights her anticipation of reconnecting with colleagues and community members through the re-launched Regional Centers for Workforce Transformation initiatives in May.

Key Takeaways:

• Emotional connection between DSPs and those they support is crucial for successful and meaningful assistance.
• Tish emphasizes the role of DSPs in facilitating a fulfilling life for individuals with disabilities, advocating for an understanding-driven approach to care.
• Building trust and safety requires understanding and time, which can be more challenging without the ability to choose one's support staff.
• DSPs should recognize their impact, whether they're in someone’s life for a brief moment or an extended period, underscoring their significance.

Notable Quotes:

• "You can't really support me if you don't understand me or try to understand where I'm coming from."
• "Whether you're in somebody's life for 15 minutes or for 15 years, you play a significant role in their life, and that matters."
• "My success is part of their [DSPs] success."

Resources:

• The Regional Centers for Workforce Transformation
• Be Fair to Direct Care Campaign
• NADSP (National Alliance for Direct Support Professionals)

Intrigued by Tish's insights on the essential roles played by DSPs? Tune in to the full episode to gain deeper understanding and stay updated with more enlightening content from DSP Talk.

Hosted on Acast. See acast.com/privacy for more information.

Alyza Tarmohamed is the Chief Executive Officer and Co-President of Radicle Health, a company dedicated to transforming human services through innovative technology. With a unique professional journey transitioning from finance and insurance technology to behavioral health, Alyza has infused her expertise in software solutions to enhance efficiency and care quality in the human services field. Her personal motivation is deeply rooted in her family’s community service background, inspired by her upbringing in a small Canadian town.

Episode Summary:

Welcome back to DSP Talks with our host, Asheley Blaise, who delves into the intersection of technology and behavioral health services. Today's insightful conversation features Alyza Tarmohamed, CEO and Co-President of Radicle Health, who shares her unconventional journey into the sector and outlines the impact of digital documentation on the responsibilities of Direct Support Professionals (DSPs). With an industry in evolution, Alyza emphasizes the crucial role technology plays in enabling more holistic care approaches.

In this episode, Alyza discusses the transformative power of digital documentation, highlighting its ability to improve continuity of care, streamline communication, and enhance goal tracking for individuals receiving services. The discussion touches on the challenges of adopting new tech solutions and the need to increase DSP proficiency with intuitive design and comprehensive training. Technology is explored as a future tool to minimize time spent on administrative tasks, allowing DSPs more time for direct care, thus maximizing their impact.

Key Takeaways:

• Impact of Digital Documentation: Enhanced continuity and holistic care are key benefits, as well as more seamless communication within care teams.
• Technology as a Support, Not a Task: Emphasis is on tech tools that facilitate easier job performance, not just add to DSP workload.
• Training and Usability: Technology companies are investing heavily in user-friendly platforms and practical training to ensure DSPs can leverage technology effectively.
• Future Technological Innovations: Exploring AI and automation to reduce documentation time, supporting DSPs in providing quality care.

Notable Quotes:

• "Technology isn't there for technology's sake; it’s there to ensure things get better or help people do their jobs more easily."
• "DSPs are on the front line, making sure we see those connections in the data, linking individual care to broader program goals."
• "Without an overarching picture of data over time, we miss the opportunity to showcase meaningful progress and impact."
• "My hope is that technology will have a real impact on how DSPs do their work in the future."

Resources:

• Radicle Health: Learn more about the company and its mission

Dive into the full episode to witness the future of technology in behavioral health with Alyza Tarmohamed. Stay tuned for more enlightening discussions from DSP Talks, spotlighting the intersection of care and innovation.

Hosted on Acast. See acast.com/privacy for more information.

Kenny Burr is a dedicated advocate for disability rights and accessibility, with a focus on improving the voting process for individuals with disabilities. He has held leadership roles with the Regional Centers for Workforce Transformation, serving as a self-advocate lead and region 3 lead, where he supported workforce champions and direct support professionals. Kenny has been active on various disability advocacy boards, including the Mayor's Disability Advisory Committee in White Plains and the County of Westchester. A graduate of the Marinette Public School system and Wright State University with a bachelor’s degree in Political Science and a minor in International Relations, Kenny is passionate about social justice, education, and community improvement, particularly in his hometown of Larchmont.

In this thought-provoking episode of DSP Talk, host Asheley Blaise welcomes Kenny Burr, a passionate advocate for disability voting rights and accessibility. Kenny, who has been active on many disability advocacy boards, shares his journey from personal experiences that fueled his drive for change to the broader impact of his efforts in the community. With a strong background in leadership roles and a keen understanding of the issues at hand, Kenny offers valuable insights for anyone interested in advocacy and inclusion.

Kenny delves into the specific barriers that individuals with disabilities face when voting, such as accessibility issues with polling places and voting machines, and emphasizes the importance of addressing these challenges to ensure full participation in the electoral process. He outlines the critical role direct support professionals play in facilitating voter access and the need for them to support without influencing decisions. Throughout the episode, Kenny underscores the importance of being informed about issues and active in voting, particularly for marginalized communities, highlighting that every vote indeed matters.

Key Takeaways:

• Kenny Burr's personal experiences with cerebral palsy have fueled his advocacy for enhanced accessibility and inclusion.
• Voting accessibility remains a significant barrier for individuals with disabilities, necessitating increased awareness and systemic improvements.
• Direct support professionals are pivotal in assisting individuals with disabilities in the voting process, without exerting influence over their choices.
• Participation in voting ensures that marginalized communities can voice their needs and priorities, shaping a more inclusive society.
• Empowered and informed voting is crucial for advocating social justice and sustaining improvements in community life.

Resources:

• Regional Centers for Workforce Transformation
• Mayor's Disability Advisory Committee
• Disability Voting Guide – U.S. Vote Foundation
• ADA Protecting the Rights of Voters

Hosted on Acast. See acast.com/privacy for more information.

Vivian Attanasio: Vivian Attanasio is an esteemed behavioral specialist with extensive experience in developing and implementing behavior intervention plans. With a career spanning several years, she has worked closely with both individuals and interdisciplinary teams to promote effective behavior management and intervention strategies. Vivian is recognized for her innovative approaches and profound commitment to enhancing the quality of life for individuals through tailored behavior supports.

Episode Summary:

In this enlightening episode, Asheley Blaise sits down with Vivian Attanasio to explore the critical role of active listening and direct support professionals (DSPs) in the design and implementation of effective behavior intervention plans. Vivian shares her extensive experience and highlights the nuances often missed in behavior plans that can significantly impact their effectiveness. They discuss the importance of respecting individual preferences, understanding cultural considerations, and the ethical concerns surrounding the implementation of ABA.

This episode emphasizes how proactive strategies shaped by listening to DSPs can lead to better, more personalized intervention plans. Vivian provides compelling examples to illustrate how nuanced details gleaned from active listening can avoid behavioral escalations and promote healthier outcomes. They also delve into the significance of ongoing training and education tailored to how modern DSPs learn, addressing potential ethical issues in ABA to ensure respect for individuals' autonomy.

Key Takeaways:

• Active listening to DSPs is crucial for developing effective, personalized behavior intervention plans, leading to better health outcomes and reduced behavioral escalations.
• Addressing triggers before they lead to escalations requires a deep understanding of individual preferences and challenges, which can be achieved through thorough communication and observation.
• Ongoing, tailored training for DSPs is fundamental to ensure they understand and can implement behavior plans effectively, considering the modern context of learning and societal changes.
• Ethical considerations in ABA should prioritize the individual's autonomy and safety, ensuring behavior interventions respect personal rights and preferences.

Resources:

• DSP Core Competency Standards: DSP Competencies and Code of Ethics Series | Regional Centers for Workforce Transformation
• Applied Behavior Analysis (ABA): Applied Behavior Analysis (ABA) | Autism Speaks
• ABA Ethical Guidelines: ETHICS CODES - Behavior Analyst Certification Board (bacb.com)
• Diagnostic and Statistical Manual of Mental Disorders (DSM): Psychiatry.org - DSM

For a deeper understanding of the vital role of DSPs and comprehensive insights into effective behavior management strategies, make sure to listen to the full episode. Stay tuned for more enlightening discussions with experts in the field of behavioral sciences.

Hosted on Acast. See acast.com/privacy for more information.