Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele

How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜

Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy.

Florien talks with Torie about:

• Who carers are
• The staggering £184 billion value that carers add to the UK economy
• The personal costs of caregiving - sleep, stress, health, finances & relationships
• Why epilepsy research rarely includes carers (compared with other diseases)
• The importance of measuring carer outcomes through core outcome sets
• Florien’s study to define what truly matters most to carers

👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too.

🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy

🤩 More about Florien 👇🏻 https://www.torierobinson.com/guests/florien-boele

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🎧 Watch episode on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights

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