On this special episode of the Bloodstream Podcast, hosts Patrick James Lynch and Marc Pangilinan kick off a three-part Blood Brother Collaboration, featuring heartfelt stories and insights from men across the bleeding disorders community. The discussion centers on lived experiences, including complicated grief, joining the community, wearing multiple hats, and challenges across the lifespan. Listeners will hear candid conversations about overcoming obstacles, building support networks, and the evolution of treatment and community resources. Tune in for an inspiring and honest look at life with bleeding disorders, and discover valuable resources and support along the way.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

To meet members of the community and to hear more about their hemophilia A journey, head

to www.hemophiliacommunity.com

Subscribe:

The BloodStream Podcast

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on X/Twitter

BloodStream on Instagram

BloodStream on LinkedIn

BloodStream on TikTok

In this episode of BloodStream, we look back at the history of gene therapy and highlight key voices from Portraits of Progress. We also share the story behind I'm Fine, featuring community advocate Benjamin Denman, recently honored at the Hope Gala. Plus, we introduce HFA's new Voice of the Community initiative and how you can get involved in shaping the future of bleeding disorders care and advocacy.

Tune in and join us in reflecting on where we've been, where we are, and where our community is heading next.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

"I'm Fine" Segment

I'm Fine is presented by @SanofiUS

#bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy

Show Notes:

Portraits of Progress: https://www.portraitsofprogress.com/

HFA Voice of Community: https://www.hemophiliafed.org/voice-of-the-community/

Subscribe:

The BloodStream Podcast

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on X/Twitter

BloodStream on Instagram

BloodStream on LinkedIn

BloodStream on TikTok

This week on BloodStream, we're talking to changemakers. Elsa and Ann Kendall from The Red Ink Project share how they're shifting the story for women and girls in bleeding disorders. And advocate Lanre Tunji-Ajayi joins us to discuss building global networks for sickle cell and other inherited blood disorders. A conversation about voice, visibility, and what it takes to lead.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Red Ink Project

Global Action Network for Sickle Cell and Other Inherited Blood Disorders

Subscribe:

The BloodStream Podcast

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on X/Twitter

BloodStream on Instagram

BloodStream on LinkedIn

BloodStream on TikTok