Episodios

  • Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome

    Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome
    Nov 13 2025
    In this episode, Nicole Watson shares her daughter Emma’s powerful journey living with Dravet syndrome, a rare and severe form of epilepsy. From the early days of uncertainty and searching for answers to finding the right care and treatment, Nicole opens up about resilience, hope, and the lessons learned along the way. Her story offers heartfelt insight for families, caregivers, and healthcare professionals alike.
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    19 m
  • Redefining the Doctor-Patient Partnership: What a Physician-Patient Can Teach Us About Parkinson Disease Care

    Redefining the Doctor-Patient Partnership: What a Physician-Patient Can Teach Us About Parkinson Disease Care
    Oct 17 2025
    How can neurologists partner with their patients living with Parkinson disease? Kathleen Blake, MD, MPH, Santa Fe, NM, Vice Chair of the Parkinson's Foundation People with Parkinson’s Advisory Council, discusses Parkinson disease care from her unique perspective as both a patient and former physician.
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    13 m
  • Mastering Migraine

    Mastering Migraine
    May 7 2025
    Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C. Buse, PhD, Clinical Professor, Albert Einstein College of Medicine, New York, NY, who discusses recent research in the field.
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    25 m
  • The Importance of Early Diagnosis and Treatment of Alzheimer Disease

    The Importance of Early Diagnosis and Treatment of Alzheimer Disease
    Jan 22 2025
    Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis and treatment in Alzheimer disease, including other factors that can help patients thrive when living with this condition.
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    21 m
  • Rehabilitation after Traumatic Brain Injury (TBI)

    Rehabilitation after Traumatic Brain Injury (TBI)
    Dec 19 2024
    After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance runs out. Kel is joined by Alfreida Melvin, mother of Dontel, who is a recipient of the scholarship from the “Kel Strong” Mabatah Foundation. https://www.kelstrongfoundation.com/
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    24 m
  • Redefining Life with Friedreich Ataxia

    Redefining Life with Friedreich Ataxia
    Nov 20 2024
    We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.
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    12 m
  • Young-Onset ALS: Diagnosis and Research

    Young-Onset ALS: Diagnosis and Research
    Nov 8 2024
    In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.
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    20 m
  • Rett Syndrome: Magnolia and Her Family's Experience.

    Rett Syndrome: Magnolia and Her Family's Experience.
    Oct 31 2024
    AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.
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    23 m
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