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AlzAuthors: Untangling Alzheimer's & Dementia

AlzAuthors: Untangling Alzheimer's & Dementia

De: AlzAuthors Featured on The Whole Care Network
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Welcome to the AlzAuthors podcast! We’re so glad you found us. We're the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Featuring Marianne Sciucco, RN

Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.

Learn more about Marianne at AlzAuthors.com.

Purchase "Blue Hydrangeas"

Featuring Christy Byrne Yates, M.S., LEP

Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Learn more about Christy at AlzAuthors.com.

AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

AlzAuthors
Arte Biografías y Memorias Ciencias Sociales Economía Gestión Gestión y Liderazgo Higiene y Vida Saludable Historia y Crítica Literaria Psicología Psicología y Salud Mental Relaciones
Episodios
  • Senior Living Made S.I.M.P.L.E. Expert Tips for Navigating Dementia, Memory Care & Caregiver Guilt with Shari Ross
    Oct 7 2025
    In this episode, host Marianne Sciucco and acquisitions editor Sheila Luna sit down with Shari Ross, a senior healthcare professional and author of “Senior Living Made S.I.M.P.L.E.: A Real World Guide for Navigating Senior Care for Your Loved One.” Shari’s expertise spans her professional experience in senior living communities and her personal connection to dementia through family. This conversation explores the emotional, practical, and logistical challenges families face when transitioning loved ones to senior living, with a focus on memory care, language barriers, and advocacy. In this episode: Shari discusses her background as a senior healthcare specialist, working in senior living communities, and her personal caregiving experience with her grandmother.She provides an overview of her new guide, “Senior Living Made S.I.M.P.L.E.,” and how it can help make senior living transitions easier for all.The book’s conversational, relatable, and honest approach to guiding families through the overwhelming senior care landscape is discussedShari’s “S.I.M.P.L.E.” framework is explained: Support, Information, Matching, Preparation, Letting Go, Engagement.In addition, Shari reframes the “new” memory Care CommunitiesThe importance of language—using terms like “community” and “neighborhood” to foster warmth and reduce stigma.Shari provides pointers on transitioning to Community LivingWhy adult children and spouses often find themselves overwhelmed and unsure where to start, and how to approach those milestones.The need to tour and “feel the vibe,” prioritize care and community over aesthetics.The power of social engagement, good nutrition, and routine in enhancing quality of life. Aging in Place vs. Senior Living The hidden burdens and risks of managing aging at home—care coordination, safety concerns, and social isolation.Shari’s research: Most homes aren’t designed for aging adults; successful “aging in place” requires massive support.Community living can provide more safety, social interaction, and peace of mind for both loved ones and families. Buy Shari’s book here Learn more about Shari Ross and her resources and services at seniorlivingmadesimple.com. Key Quotes: “Memory care is not a punishment; it’s a lifeline.”“Independence without a support net is just a slow-motion disaster.”“Be observant, be vocal, and trust your gut.” Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube About the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store
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    56 m
  • No Country for Old People: Filmmaking for Change in Nursing Homes with Susie Singer Carter
    Sep 30 2025
    Celebrate a decade of AlzAuthors with this replay of a film discussion from our first film festival! Marianne Sciucco and the AlzAuthors community gathered to discuss Susie Singer Carter's documentary series No Country for Old People, inspired by her painful but illuminating journey alongside her mother in a five-star Los Angeles nursing facility. Key Topics Behind the Film: Susie shares what drove her to make No Country for Old People, highlighting the persistent systemic crises in long-term care and her struggle to advocate for her mom within a broken system. She discusses both personal and policy challenges—from underfunding and understaffing to navigating Medicaid and family caregiver roles.Caregiving Realities: Multiple audience members and guests brought their own lived experiences—from those who have placed loved ones in care homes to those doing the daily grind at their side. Honest input covers the isolation and exhaustion of caregiving, the guilt and judgments faced, and the varied trajectories and needs of those with dementia.Systemic and Cultural Barriers: The episode reveals the complexities behind facility care: understaffing, high turnover, the business model of elder care, and how profit-driven motives can lead to neglect, overmedication, and a lack of dignity for residents.Advocacy and Taking Action: Susie announced the ROAR initiative—Respect, Oversight, Advocacy, and Reform for Long Term Care. She stresses the urgent need for grassroots collective action and oversight to drive meaningful change for people living with dementia and their caregivers. Standout Quotes from Susie Singer Carter “Love is super powerful. I think it’s our greatest tool.”“Documentaries are not money makers. They are changemakers at best.”“We have a broken system... But it’s so important to know what’s out there and what’s really happening.” Takeaways Caregiver stories are unique—what works (or doesn’t) varies case by case.The importance of advocacy and family involvement doesn’t end with placement in a facility; sometimes, it increases.Systemic reforms are desperately needed, and community effort can move the needle.Connection, creativity, and compassion remain vital tools in the caregiving journey. Next Up Tune in to the upcoming episode with Frank Silverstein as he discusses his short film, Lousy: Love in the Time of Dementia, and continue engaging with films that capture the real, raw, and sometimes uplifting world of dementia caregiving. Join the film festival Resources Mentioned Listen & Watch: Find film festival films, replays, and podcast episodes on alzauthors.comListen to Susie's Love Conquers Alz PodcastWatch My Mom and the Girl (short film)Watch No Country for Old People (docu-series)Get Involved with ROARSubscribe to the AlzAuthors newsletter and follow us on social media (@alzauthors on Facebook, Twitter/X, Instagram, LinkedIn, Pinterest, Bluesky). Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    1 h y 17 m
  • Planet Alzheimer’s: Film, Poetry, and the Human Spirit with Mary Crescenzo
    Sep 16 2025
    Welcome to a special episode of the AlzAuthors podcast, part of our first-ever Film Festival! Celebrating our 10th anniversary, host Marianne Sciucco sits down with acclaimed arts educator, author, and filmmaker Mary Crescenzo to explore the transformative role of the arts in dementia care. In this heartfelt conversation, Mary shares her journey from early experiences in nursing homes to the creation of her poetic play-turned-film, "Planet A." We discuss her innovative, age-blind casting, the real-life stories inspiring her work, and practical strategies caregivers can use to bring arts engagement into dementia care—at home or in care facilities. Whether you’re navigating Alzheimer’s in your family, working in dementia care, or seeking creative approaches to foster dignity and connection, this episode is filled with inspiring insights and actionable tips. Key Topics Covered: Dementia Care & the Arts: Mary describes how music, visual art, dance, storytelling, and poetry can spark joy, communication, and connection for people living with dementia.How the Arts Can Reduce Isolation: Real examples showing that engaging in the arts can counteract boredom, boost mood, and foster community in care settings.Art Activities for Caregivers: Practical advice and encouragement for caregivers to use arts engagement at home—even if you don’t see yourself as an artist!Readings from the Film: Moving excerpts from Mary’s poetry, capturing the emotional landscape of people living with dementia and their caregivers. Quotes: “Everyone should be engaged in the arts to whatever level, because it’s so beneficial to heart and mind and life.” – Mary Crescenzo“Boredom is huge. People decline when they’re bored. But you give them something creative, they light up.” – Marianne Sciucco“You don’t have to be an artist to make a difference – just pick up a pencil, sing together, or sway to music.” - Mary Crescenzo Takeaways: Try simple creative activities—drawing, music, singing, storytelling—regularly, not just once.Don’t let fear or “not being an artist” stop you. The benefits are in doing, not perfection.Engaging in the arts brings meaning, dignity, and even joy to those living with dementia.The arts can transform not only the person with dementia but also relieve and uplift caregivers.Seek out support, community, and inspiration—you are not alone! Resources and Links: Watch "Planet A" – available until year-end on YouTube. Register at AlzAuthors.com to receive linkBuy Mary Crescenzo’s Book: "The Planet Alzheimer’s Guide – 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own" on AmazonVisit AlzAuthors Website for a wealth of caregiver resourcesLearn about Creative Writing Workshops for Caregivers: Contact Mary CrescenzoSubscribe to our Podcast: Available on Apple, Spotify, Amazon Music, Pandora, iHeartRadio and more.Follow AlzAuthors on Social: Facebook, Instagram, LinkedIn, Pinterest, Twitter/X and Blue Sky for daily support, book recommendations, and community stories. Don’t miss our continuing film festival—visit our website for upcoming screenings, panel discussions, and more creative resources for the dementia journey. If you found this episode helpful, subscribe, share, and leave us a review! For more stories and support, visit alzauthors.com. Meet the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Proud to be a Whole Care Network Featured Podcast Want to be on the podcast? Here’s what you need to know Shop our Store
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    55 m
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