#4- Grace - When your child stops growing
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In this episode, Grace shares her family’s journey through discovering that both of her young children have growth hormone deficiency — from spotting early signs, to seeking answers when her instincts told her something wasn’t right, to navigating diagnosis, testing, treatment and life on daily injections.
It’s a story about persistence, parental intuition, advocating for your children, and the enormous difference early diagnosis can make.
💬 In this episode:
- Spotting the first signs that her son’s growth had stalled — and why she trusted her instincts
- The long process of ruling out allergies, food intolerances and “catch-down growth”
- How she pushed for referrals and why private healthcare accelerated the diagnosis
- What happens during endocrine testing: IGF-1 blood tests, stimulation tests, and MRIs
- Understanding growth hormone deficiency and why early diagnosis matters
- Starting treatment: daily injections, bedtime routines, and the emotional side for young children
- Realising her daughter also had the same condition — and how symptoms can look different
- The impact of treatment: energy levels, confidence, muscle strength and rapid catch-up growth
- Finding community through the Child Growth Foundation
- Grace’s advice for parents concerned about their child’s centile chart or growth trajectory
🩺 Useful Resources:
- Child Growth Foundation
https://childgrowthfoundation.org - NHS – Growth Hormone Deficiency in Children
https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/growth-hormone-deficiency/ - NICE – Human Growth Hormone (Somatropin) in Children
https://www.nice.org.uk/guidance/ta188 - Royal College of Paediatrics and Child Health – UK-WHO Growth Charts
https://www.rcpch.ac.uk/resources/growth-charts - MAGIC Foundation (Growth Disorders Support)
https://www.magicfoundation.org
💛 Raising with the Village
This podcast is about real parents sharing real stories — because no one should feel alone in parenthood.
New episodes every Thursday!
🌐 Website: https://raisingwith.co.uk/
📸 Instagram: @raisingwiththevillage
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If you’d like to share your own story — about birth, parenting, or family life — get in touch via the website or Instagram DMs.