#176 Stop Waiting to Be Understood: Speak Up After Aphasia
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If you're living with a communication challenge, you know what it feels like when people talk too fast or finish your sentences. Self-advocacy is the courage to stop waiting to be understood and instead, give people the rules to meet you halfway.
Join host Genevieve as she shares how Bruce, living with ataxic dysarthria, rebuilt his confidence by learning to speak up. Discover the 3 Pillars of Advocacy for taking back control: owning your energy, planning ahead, and giving others clear tools to transform awkwardness into understanding. Self-advocacy isn't about confrontation—it's communication by design.
Key Takeaways (The 3 Pillars of Advocacy)
- Own Your Energy Tank: Manage your stamina by scheduling breaks and hydration to keep your speech strong and confidence high.
- Plan the Logistics First: Remove friction points by calling ahead to check for microphones, stairs, or a quiet space to reset.
- Give Others a Clear Tool: Use a small card or note (e.g., "I know what I want to say—it just takes me a little longer. Your patience helps me.") to empower listeners to respond with grace.
Call to Action If you want to make your gatherings more inclusive—and these strategies work all year—you can get my book Aphasia Inclusive Celebrations at: https://lifeaphasiaacademy.co/aphasia-inclusive-celebrations