1. Living with a rare condition

What is it like living with a rare blood or bone marrow disorder? In the first episode of this series, we discuss what it’s like to live with a rare condition day-to-day.

Conditions mentioned in this episode: Sickle cell anemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemoglobinuria

Content note: This episode discusses miscarriage and pregnancy loss.

Further Reading:

super-rare.org theaat.org.uk pnhuk.org dcaction.org togetherwecan.uk