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Thriving with Neurofibromatosis
- Narrado por: Kirstianne Hopkins
- Duración: 2 h y 59 m
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Resumen del Editor
One in 3,000 people is born with neurofibromatosis. It affects all of them in different ways. For some, neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of them are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all the effects of NF. Stereotyped, ignored, or shunned by a world who thinks they either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks, NF'ers often choose to hide from others - and end up hiding from themselves.
My name is Kristi Hopkins. In 2007, I chose to stop hiding, and start thriving. NF had become a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do you.
Thriving with Neurofibromatosis. We all have a story, this is mine.
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I'm Walking as Straight as I Can
- Transcending Disability in Hollywood and Beyond
- De: Ted Nichelson, Geri Jewell
- Narrado por: Geri Jewell
- Duración: 14 h y 3 m
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Born with cerebral palsy, Geri Jewell inspired a generation of young people when she became the first person with a disability to appear in a recurring role on prime-time television, with her groundbreaking character, Cousin Geri, on the NBC sitcom The Facts of Life. The book's title - I’m Walking As Straight As I Can - has a double meaning, referring to both Jewell's sexuality and her extraordinary struggle growing up with cerebral palsy.
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Excellent! I recommend!
- De Sharlotte en 06-06-16
De: Ted Nichelson, y otros
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An Uncomplicated Life
- A Father's Memoir of His Exceptional Daughter
- De: Paul Daugherty
- Narrado por: Robert McCollum
- Duración: 9 h y 17 m
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A father’s exhilarating and funny love letter to his daughter with Down syndrome whose vibrant and infectious approach to life has something to teach all of us about how we can better live our own. Jillian Daugherty was born with Down syndrome. On the day Paul and Kerry, her parents, brought her home from the hospital they were flooded with worry and uncertainty, but also overwhelming love, which they channeled to “the job of building the better Jillian”. While their daughter had special needs, they refused to allow her to grow up needy - “expect, don’t accept” became their mantra.
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A Story on the Beauties of DS
- De Matthew en 04-16-23
De: Paul Daugherty
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Everything You Ever Wanted
- A Memoir
- De: Jillian Lauren
- Narrado por: Jillian Lauren
- Duración: 8 h y 16 m
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In her younger years, Jillian Lauren was a college dropout, a drug addict, and an international concubine in the Prince of Brunei's harem, an experience she immortalized in her best-selling memoir, Some Girls. In her 30s, Jillian's most radical act is learning the steadying power of love when she and her rock star husband adopt an Ethiopian child with special needs.
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Great for adoptive families
- De berry bomb en 07-06-22
De: Jillian Lauren
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Not Afraid of Life
- My Journey So Far
- De: Bristol Palin, Nancy French
- Narrado por: Bristol Palin
- Duración: 6 h y 49 m
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In this personal memoir, Bristol Palin opens up for the first time ever. She takes listeners behind the scenes, from growing up in Alaska to coming of age amid the media and political frenzy surrounding her mother's political rise; from becoming a single mother while still a teenager to coping as her relationship with the baby's father crumbled publicly. Through all of these ups and downs, Bristol learned how to face her challenges head-on, with courage and grace.
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Forgiveness
- De Dennis en 01-16-16
De: Bristol Palin, y otros
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Finding Grace
- A True Story about Losing Your Way in Life...and Finding It Again
- De: Donna VanLiere
- Narrado por: Donna VanLiere
- Duración: 4 h y 37 m
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Finding Grace is the powerful, often humorous, and deeply moving story of one woman's journey of broken dreams. It is the story of how a painful legacy of the past is confronted and met with peace. This book is for anyone who has struggled to understand why our desires---even the simplest ones---are sometimes denied or who has questioned where God is when we need Him most. This story is about one woman's unlikely road to motherhood. Finally, it's a book about the "undeserved gift which is life itself."
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Finding Grace... and joy, delight, and camaraderie
- De WeRLoved en 02-02-17
De: Donna VanLiere
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Instant Mom
- De: Nia Vardalos
- Narrado por: Nia Vardalos
- Duración: 7 h y 34 m
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Some families are created in different ways but are still, in every way, a family. Writer and star of My Big Fat Greek Wedding Nia Vardalos firmly believed she was supposed to be a mom, but Mother Nature and modern medicine had put her in a headlock. So she made a choice that shocked friends, family, and even herself: with only 14 hours' notice, she adopted a preschooler.
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A wealth of information for those who wish to adopt
- De Michele Sutherland en 01-11-23
De: Nia Vardalos
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Why I Hate Green Beans
- And Other Confessions About Relationships, Reality TV, and How We See Ourselves
- De: Lincee Ray
- Narrado por: Lincee Ray
- Duración: 4 h y 57 m
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If there is one thing Lincee Ray has learned over the years, it's that the majority of women on the planet struggle with insecurities. Our skinny jeans mock us. Our just-trying-to-help mothers are just driving us crazy. Our social media feeds taunt us with everyone else's picture-perfect lives. It's enough to send you on a gummy-bear bender while binge-watching Friends reruns and not showering for a week. Lincee knows. She's been there. Right there, in fact. Gummy bears and all.
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Perfect in every way!
- De Anonymous User en 10-19-22
De: Lincee Ray
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Chicken Soup for the Soul - Find Your Happiness
- 101 Inspirational Stories about Finding Your Purpose, Passion, and Joy
- De: Jack Canfield, Mark Victor Hansen
- Narrado por: Cynthia Barrett
- Duración: 11 h y 40 m
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What makes you happy? Others share how they found their passion, purpose, and joy in life in these 101 personal and exciting stories that are sure to inspire and encourage listeners to find their own happiness. Chicken Soup for the Soul: Find Your Happiness will encourage listeners to pursue their dreams, find their passion and seek joy in their life with its 101 personal and inspiring stories. This book continues Chicken Soup for the Soul’s focus on inspiration and hope, reminding us that we all can find our own happiness.
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I got even more depressed
- De Tom en 09-08-14
De: Jack Canfield, y otros
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Inconceivable
- A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift
- De: Carolyn Savage, Sean Savage
- Narrado por: Cassandra Campbell, Danny Campbell
- Duración: 9 h y 52 m
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A medical mistake during an IVF procedure.An unthinkable situation....you're pregnant with the wrong baby. You can terminate, but you can't keep him. What choice would you make?
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"Misconception" and "Inconceivable"
- De Simone en 12-17-12
De: Carolyn Savage, y otros
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Laughing at My Nightmare
- De: Shane Burcaw
- Narrado por: Kirby Heyborne
- Duración: 6 h y 7 m
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With acerbic wit and a hilarious voice, Shane Burcaw's Laughing at My Nightmare describes the challenges he faces as a 21-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease
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Insightful and unflinchingly honest
- De Abby Goldsmith en 11-09-14
De: Shane Burcaw
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Bloom
- Finding Beauty in the Unexpected - A Memoir
- De: Kelle Hampton
- Narrado por: Kelle Hampton
- Duración: 6 h y 41 m
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When Kelle Hampton's new daughter was placed in her arms in the delivery room, she knew instantly that something was wrong. As her friends and family celebrated, a terrified Kelle was certain that Nella had Down syndrome - a fear her pediatrician soon confirmed. Yet gradually Kelle embraced the realization that she had been chosen to experience an extraordinary and special gift. With lyrical prose and gorgeous photography, Bloom takes listeners on a wondrous journey through Nella's first year of life.
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Beautiful Story
- De Janelle en 03-10-24
De: Kelle Hampton
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Believing in Magic
- My Story of Love, Overcoming Adversity, and Keeping the Faith
- De: Cookie Johnson, Denene Millner
- Narrado por: Robin Miles
- Duración: 7 h y 11 m
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On November 7, 1991, basketball legend Magic Johnson stunned the world with the news that he was HIV-positive. For the millions who tuned in as he shared his news, Magic's revelation became a seminal moment for the nation. Now twenty-five years later, Cookie Johnson shares her story and the emotional journey that started on that day - from life as a pregnant and joyous newlywed to one filled with the fear that her husband would die, she and her baby would, too, be infected with the virus.
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Not the inspiration story
- De M. Mao en 07-06-17
De: Cookie Johnson, y otros
Lo que los oyentes dicen sobre Thriving with Neurofibromatosis
Calificaciones medias de los clientesReseñas - Selecciona las pestañas a continuación para cambiar el origen de las reseñas.
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- michael harvey
- 12-02-20
What a waste
Please don’t waste your time on this one. Nf is barely mentioned in this story. This book is more about her life growing up where nf is barely mentioned. I have nf and found this book a complete waste of my time
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