Can't Eat, Can't Breathe and Other Ways Cystic Fibrosis Has F#$%*d Me

De: Jay Gironimi

Narrado por: Jay Gironimi

Jay Gironimi (rhymes with astronomy) is a man who can't eat and can't breathe. He wrote a book about how that's working out for him. Can't Eat, Can't Breathe and Other Ways Cystic Fibrosis Has F#$%*d Me is not an inspirational story of triumph over adversity. But if you like stories about poop and mucus, it just might be the audiobook for you.

©2013 Jason Gironimi (P)2013 Jason Gironimi

Realistic view of living with CF

We found out my daughter had CF when she wad 2 weeks old. I have always been her advocate taking care of day to day while she grew up while my husband persistently searched for new medication to help our daughter. When she was 9 and in the hospital for IV’s I left the hospital for an hour to check my business and left my computer on for my daughter to play games. Instead she looked up information about CF. Needless to say there were a lot of tears and anger. My daughter told me things I could never understand and will never understand. Reading this book gave me more in site on my daughters perspective and helped bring us closer. Having CF sucks and I will never fully understand what my daughter goes through however I do know she is the bravest, most mature and determined young woman I know. Now in college my daughter is excelling and is a very independent and I have learned to gradually let her become the wonderful young woman I know she will be. I highly recommend this books for all parents, siblings and relatives.

So close to home!

This book was basically me telling me about my life just in a different voice, with a different name, and with different experiences. Also being held hostage by my lungs everyday of my life, I found that there were a ton of feelings that Jay and I had in common. What an amazing representation of just how many times I want to say "fuck it, or fuck them" when dealing with certain aspects of my CF. I've recommended this book to just about everyone I know over social media and face to face. I've done so because like Jay had mentioned, I am also horrible at expressing my feelings towards this Swamp Thing of a disease in a healthy way with friends and family. This book could do a much better job than me just bitching about my day with Shit-stic Fibrosis. Thank you Jay.