Aged care crisis leaves MND families waiting months

Motor neurone disease patient Julie is caught in Australia's aged care crisis, waiting 11 months for approval to move from level three to level seven support, with an additional five-month wait for allocation despite the urgent progression of her condition. Her daughter Jayne Christian was forced to leave her job to become a full-time carer after the November 2024 'Support at Home' system reforms created significant delays and barriers to accessing appropriate care. In the Riverina region of New South Wales, the MND diagnosis rate is seven times higher than the national average, yet specialist clinics remain unavailable.

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