In this episode of The Galactosemia Podcast, we’re joined by Dr. Synneva Hagen Lillevik, a registered dietitian and researcher, to explore her groundbreaking work on the potential benefits of purple sweet potatoes in treating Classic Galactosemia. Dr. Hagen Lillevik shares insights from her recent studies, offering hope and new directions for dietary management of this rare condition.

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Links & Resources Mentioned:

• Purple Sweet Potato Study - https://www.mdpi.com/1422-0067/23/15/8654

  
  

  Guest Bio – Dr. Synneva Hagen LillevikDr. Synneva Hagen Lillevik is a registered dietitian and a postdoctoral research fellow with a robust background in nutrition and metabolic disorders. She completed her PhD at the University of Utah, where her research significantly advanced the understanding of primary ovarian insufficiency in Classic Galactosemia. Dr. Hagen Lillevik is particularly noted for her pioneering work on the use of purple sweet potatoes to mitigate oxidative stress associated with metabolic disorders. Currently, she continues her research at the University of Colorado Anschutz Medical Campus, focusing on nutrition’s role in preventing and managing gestational diabetes. Her work exemplifies a deep commitment to integrating clinical practice with research to improve patient outcomes in rare metabolic diseases.

  
  

  Episode Chapters:

  0:00 – Introduction to the Episode and Overview of Dr. Synneva Hagen Lillevik’s Work

  2:00 – Dr. Synneva Hagen Lillevik: A Journey Through Nutrition and Metabolic Research

  4:30 – Exploring the Potential of Purple Sweet Potatoes in Classic Galactosemia Treatment

  7:00 – Investigating Primary Ovarian Insufficiency in Classic Galactosemia Patients

  11:00 – The Broader Impacts of Dr. Hagen Lillevik’s Research on Patient Care

  15:00 – Future Research Directions and the Promise of Dietary Interventions

  20:00 – Nutritional Strategies and Dietary Management of Galactosemia

  25:00 – Listener Q&A: Practical Advice on Diet and Daily Management of Galactosemia

  30:00 – The Critical Role of Antioxidants in Managing Symptoms of Galactosemia

  38:00 – Behind the Scenes: The Motivations and Aspirations of a Galactosemia Researcher

  42:00 – Building a Supportive Community for Rare Diseases Through Research and Advocacy

  45:00 – Conclusion: Key Takeaways and Closing Thoughts on Galactosemia Research