Let's Talk MND  By  cover art

Let's Talk MND

By: Jane Simpson
  • Summary

  • You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
    2024
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Episodes
  • Let's Talk MND - David Neitz - Neita
    May 1 2024

    David Neitz or Neita, was the longest-serving captain in the history of the Melbourne Football Club and the first Melbourne player to achieve the 300-game milestone.

    Which basically means in Melbourne he is a hero.

    However, David is a co-founder of Brewmanity which is more than just a brewery; it’s a Melbourne beer brand committed to doing good. Since its inception in 2015, Brewmanity has been dedicated to raising funds for Fight MND (Motor Neurone Disease) in support of David’s friend Neale Daniher, with contributions to date nearing $970,000.

    Excitingly for David Brewmanity, has just opened Melbourne’s first rooftop brewery bar in South Melbourne. Brewmanity is more than just a brewery; it’s a Melbourne beer brand committed to doing good.

    David is such a champion of Fight MND, raising funds and awareness about MND.

    If you want to come to Brewmanity's fundraiser on 31st May here is the link to buy tickets. https://www.eventbrite.com.au/e/big-freeze-brewmanity-brewery-tickets-896772720347?aff=oddtdtcreator

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    27 mins
  • Let's Talk MND Emeritus Professor Surindar Cheema PHD
    Apr 30 2024

    Emeritus Professor Surindar Cheema PhD

    Honours and PhD degrees. Since 1978, Professor Cheema has held research and teaching appointments at Monash University, The University of North Carolina at Chapel Hill USA, The University of Melbourne, The Walter and Eliza Hall Institute of Medical Research and The Howard

    Florey Institute. He spent approximately 10 years engaged in MND research as well as a volunteer with MND Victoria.

    He played a major role in bringing into Australia the mouse and rat models of MND i.e. transgenic G93A SOD1.

    Also, he initiated the setting up of the human MND tissue bank. He served on the MNDAV council for several years. He was emeritus Professor at Monash Universitybefore full retirement.

    Watch his YouTube here

    https://www.youtube.com/@biglapformnd-ci9jt?si=VspjwfvCgrcJczHg

    You can donate here

    https://www.mnd.org.au/my-fundraising/2180/big-lap-4-mnd

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    27 mins
  • Let's Talk MND - Bec Daniher
    Apr 19 2024

    Bec Daniher was living her best life.

    Bec represented Victoria in both junior and senior level rowing, winning two Queen’s Cups during her time. She had the honour of being selected to represent Australia culminating in the World Championships in 2013 in South Korea.

    Bec studied business and pursued a career in accountancy, working in the field of finance as an accountant for several years.

    Then, in 2013 the Daniher family lives were turned upside down when her father Neale was diagnosed with MND.

    Bec’s dad is Neale Daniher AO a former Australian rules footballer who played with the Essendon Football Club. He was later the coach of the Melbourne Football Club, and held coaching positions with Essendon, Fremantle and West Coast.

    However, the Danihers are not a family to sit around and do nothing.

    Bec is here to discuss Fight MND and particularly The Big Freeze, of which she is the Campaign Director, and along with Neale the face of Fight MND.

    http://fightmnd.org.au

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    26 mins

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