Embark on a journey of hope and celebration with us, as Emily Whiting and Ashlyn Thompson unveil the grandeur of the upcoming Celebration of Hope Gala. This episode of Empowered by Hope is about painting the town with the vibrancy of giving, where every dance step taken and every bid placed at the auction is a stride toward empowering families with children facing complex medical needs. Get ready to don your Derby hats and raise your mint juleps to the cause that binds us in unity and resilience, echoing the stories of those who've found strength in the embrace of our community.

It’s not just a gala; it’s a beacon of light for many, akin to the guiding mission of Charlotte's Hope Foundation, explored in detail through our heartfelt conversation. Feel the anticipation build for an evening suffused with the spirit of philanthropy, featuring live music that stirs the soul and heartfelt narratives that remind us why we gather. Whether gracing us with your presence or championing the cause from afar by joining our silent auction, your support carves pathways of hope for countless families. And when the curtain rises on this special night in Wooster, Ohio, remember the power of community and the shared promise that none of us walks this path alone.

Get your tickets or donate early if you can't attend:
https://go.rallyup.com/celebrationofhope/Campaign/Details

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

"Feeling lost in the maze of funding options for your child's needs? My proven system can help. I'll guide you through a clear, step-by-step process to identify grants and foundations that match your child's needs. Stop wasting time on dead-end searches. Gain the confidence to secure the financial support your child deserves, and free up your time to focus on what matters most." -Abby Zacharitz, Empowered by Hope Podcast Guest

Abby Zacharitz, joins us to share her heart-wrenching yet inspiring journey of hope and advocacy in today's episode of Empowered by Hope. From the depths of a near-drowning incident with her toddler son, Advocacy Abby emerged as a force of support for all parents facing the complexities of raising children with medical needs. She offers a system to help families find financial backing and emotional solace without the exhaustive searches that steal precious time.

Hope can often be the strongest medicine, a theme powerfully woven through our conversation as we traverse the paths of families relentlessly pursuing treatments like hyperbaric oxygen and stem cells for their children. These aren't just treatments; they're lifelines, often unreachable through the net of traditional insurance. We spotlight the shared strength and ingenious resourcefulness of Abby's community, parents uniting under the banner of Relentless Hope to share breakthroughs across diverse diagnoses.

Finally, Abby offers a beacon of guidance for parents navigating the treacherous waters of healthcare costs, and caregiving support. Her comprehensive grant coaching course delivers the tools and knowledge to secure crucial support, moving beyond the noise to address practical needs like insurance nuances and finding custom grants. It's about teaching families to fish in the vast sea of resources, empowering them with independence and clarity. We wrap up by reinforcing our commitment to the mission of Charlotte's Hope Foundation, inviting our listeners to engage, subscribe, and draw strength from stories that cement our belief in unity and the power of a community that faces challenges together, for our children.

Be sure to get on the waitlist for her exciting live digital course that will be packed with tools, guides, and realistic implementation steps to help your family break through limitations that stand in the way of getting your child what they need:

Join the waitlist today to be the first notified when it's available:
https://www.advocacyabby.com/#text-d07eb8b2

Get Abby's FREE Workbook: 7 Key Topics: Asking Questions of Your Insurance or Medicaid: https://www.advocacyabby.com/#row-a4dac49b

Other ways to connect with Advocacy Abby:
Website: https://www.advocacyabby.com/#headline-0eda7099
Instagram:

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

Imagine being 21 years old, newly married, in the middle of dental school and excited to start a family, then finding yourself in the NICU with your newborn for four months, completely unexpected. When life presented Leah Crum with the surprise of raising a daughter with extremely rare medical needs, she embraced it with resilience and hope. On our podcast, Leah shares her uplifting journey, revealing how she transformed her worldview to celebrate her daughter Camilla's unique milestones, rather than conform to societal expectations. Her story isn't just one of parenting through adversity but a lesson in treating oneself with the same kindness we would offer the little ones we fiercely protect.

This episode is a tapestry of real emotions, strategies, and coping mechanisms that speak to any parent facing their own set of challenges. Leah's narrative takes us from the disarming moments of Camilla's early medical battles to finding joy in the everyday nuances of family life that redefine 'normal.' Her insights shed light on the power of initiating open conversations and finding strength in community support, proving that isolation can be conquered with a proactive stance and a compassionate heart.

As we wrap up our heartfelt discussion, Leah & Ashlyn leave us with valuable takeaways on personal growth, childhood nostalgia, and the creative outlets that help manage anxiety—be it walking the dog or crafting bead bracelets. Her vibrant spirit is a reminder to listen to our needs and find solace in the things that bring us simple pleasures. Join us for this powerful conversation, where we celebrate the courage it takes to face the hard things and do so together, for the sake of the children we love.

Please consider leaving a review if this episode resinated with you and sharing it with others so they too can feel supported and encouraged by the incredible courage and enthusiasm for life Leah shares with us.

Follow Leah Crum:
Instagram: https://www.instagram.com/leahcrum_/

Join us at the Celebration of Hope Gala: a Derby Affair on May 4th in Wooster, OH as we gather to celebrate the undeniable impact of hope and band together to carve a better path forward for families who find themselves on the journey of rising a child with medical challenges.

Tickets available now—secure your spot today! Space is limited, and we want you to be part of this extraordinary event. Individual tickets and tables are available for purchase.

PS - Can't attend but still want to make a difference? You can support the cause in various ways:

1. Make a direct donation through our event website.
2. Share this invitation with your network, inviting them to join our movement of hope and compassion.
3. Spread awareness by sharing our mission and podcast, Empowered by Hope, with your community.

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

Kristy Cook, the heart behind Accessible Adventures, dedicated wife and mother of four, joins us to share her family's story, illuminating the joy and beauty found in life's unexpected paths. Embracing each day with a philosophy of "I'm glad I tried it" over "I wish I had," Kristy's narrative is a beacon of positivity for parents who have yet to step outside society's assumptions of life raising a child with special needs.

Take a seat at our "campfire conversation", where Kristy recounts adventures that have not only united her family but also provided healing and personal growth. From wheelchair-accessible escapades to the creation of an online community that offers a lifeline of information and support, Accessible Adventures is her family's answer to the scarcity of resources they once faced. With tales of their scenic travels and the impact on their family dynamics, listeners will discover just how transformative new environments and experiences can be for everyone involved.

Navigating the emotional currents of quality-of-life decisions, Kristy offers insights into the challenges and triumphs they've faced with their son Robbie's medical treatments. She opens a window into the careful balance between preserving a child's spirit and the efficacy of medical interventions, showing how trusting parental instincts can lead to moments of pure joy. As we wrap up, we're reminded of the importance of supporting each other—just as Kristy and her husband, TJ, have done through their journey. Listen in and be inspired by the strength of a family focused on living a full life, no matter the odds.

Accessible Adventures: https://accessibleadventures.net/index.html#/
Instagram: https://www.instagram.com/accessible.adventures/?hl=en
Accessible Adventures LinkTree: https://linktr.ee/Accessible.adventures

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

Today's episode is a heartwarming and powerful testament to the strength of the human spirit, as we're joined by Kyla Thomson, mother to Bella of TikTok fame from the account Bella Brave. Kyla's moving narrative takes us from the deepest worries a parent can face to a horizon of hope, as she recounts the transformative effect of Bella's medical journey on their family. Amidst the laughter and tears, Kyla's story is one of a mother's fierce love and unwavering advocacy, transforming personal grief into a rallying cry for community and purpose.

As we navigate the complexities of parenting a child with serious health conditions, Kyla reveals how she turned feelings of isolation into a beacon of hope for others. The Thomson family's narrative is a profound reflection on the shared experiences that bind us, whether we are laughing in the dark or finding solace in the kindness of strangers online. Kyla's shift from a life focused inward to one of empathy and connection is an inspiring call to action, highlighting the critical need for humor, support systems, and a community that understands the relentless demands of a medical odyssey.

Our conversation culminates in a raw exploration of the challenges and triumphs in navigating the healthcare system, the life-saving power of trusting a parent's intuition, and the remarkable journey towards healing and resilience. Kyla's wisdom shines as she shares how therapy, including EMDR, served as a linchpin in her recovery from trauma, and reinforces the vital importance of preparedness for families embarking on similar paths. This episode promises not just insights, but a shared experience of strength, courage, and the unshakeable bond forged in the fires of adversity.

If you found this episode helpful, please consider sharing so that those who need to hear Kyla's message have a better chance of receiving it. Everyone knows someone and we never know who is waiting to hear that one message that can heal their pain. Thank you!

Kyla Thomson: https://linktr.ee/kylact

Kyla Thomson: https://linktr.ee/kylact

Instagram: @kylact https://www.instagram.com/kylact/

TikTok: KylaCT https://www.tiktok.com/search?q=kylact&t=1709190850795

Kyla is available to be your next Keynote Speaker: https://bella-brave.com/en-usd/pages/speaking-services

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

When Sarah Kalis walked into the room with her son, Crew, I saw more than just a mother and her child; I saw a beacon of hope personified. Sarah, a former special education teacher turned medical mama, joins us to share the profound lessons and stories from her life with Crew, who has cerebral palsy. Her candid narration of the transformations she's undergone – from shock and grief to acceptance and advocacy – is a testament to the power of resilience amidst the unpredictable waves of parenting a child with special needs. This episode is dedicated to every parent who finds themselves on a similar journey, as we offer solidarity and comfort in knowing that even in the depths of challenge, there is community and support ready to lift you up.

Navigating the often-uncharted waters of disability parenting, our conversation extends to the wider aspects of entrenched systems that impact families like ours. The frustrations with healthcare policies, the inadequacies of insurance systems, and the fight for necessary resources are all on the table as we discuss Sarah's own experiences within Illinois' challenging framework. It's not just a dialogue but a rallying cry for collective advocacy and systemic change. And amidst these heavyweight topics, we also celebrate the small victories, like achieving milestones and acquiring adaptive equipment, because joy and gratitude are just as vital to our stories as the obstacles we confront.

Drawing on her background as a special education teacher, she underscores the indispensable role parents play in shaping their child's educational journey. The chapter on empowering parents in special education reveals strategies for more impactful and collaborative IEP meetings, highlighting the importance of parents' insights and strengths. We conclude with a powerful message of hope and support, reminding listeners of the monumental impact they have in their child's life. We urge families to harness their innate strength, to lean into the support network around them, and to keep moving forward on the path to accessibility and inclusion. Share this episode with someone who could use a reminder that they are not alone, and join us as we continue to support and empower each other through every challenge and triumph.

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

Discover the transformative power of Snyder's Hope Theory as it intertwines with the aspirations and resilience of children facing medical challenges. Ashlyn Thompson, joined by the compassionate child life specialist Kimberly Flood, unravels how setting realistic goals can fortify a young one's emotional landscape. Throughout our heartfelt discussions, we shed light on the delicate dance between parenting and advocating, all while fostering independence and self-esteem in our brave little warriors.

Taking a deep dive into the nuances of goal-setting, we connect with families from various walks of life, learning how they tailor their approach to celebrate each small triumph. Kim Flood brings invaluable insights from her practice, Bridge to Bravery, illustrating the profound impact of play in reaching developmental milestones and the art of being your child's unwavering champion. We don't just talk about challenges; we celebrate the joyous moments that bond siblings, ensuring every family member feels cherished despite the demands of medical care.

As we round off the week, I warmly invite you to lean on the strength of our shared experiences through the Charlotte Hope Foundation. Here, your stories of perseverance and hope resonate, reminding us all that we are part of a larger, supportive community. Subscribe and join us on this journey, where every parent is equipped to raise resilient children amidst adversity, and every child is encouraged to reach for the stars.

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc

In Part 2, Emily & Ashlyn examine the intricacies of Snyder's Hope Theory, revealing how it can ignite creativity and lead to innovative treatment options. We delve into the importance of seeking multiple medical opinions and building a robust support network, sharing stories that highlight the transformative journey from acceptance to active pursuit of the best care for our children.

Navigating the emotional landscape of parenting a child with special needs is akin to steering a ship through stormy seas—daunting yet possible with a steadfast mindset. This episode emphasizes the power of emotions in shaping our experiences and the value of a motivated mindset in fostering personal and creative solutions for our children. By adopting positive self-talk and reframing our narratives, we uncover strategies to combat feelings of inadequacy and reinforce our agency. Our dialogue doesn't shy away from the realistic aspects of hope, ensuring we view it as a strategy for better outcomes, not a magical cure.

In life's most tumultuous chapters, spirituality and faith often become the anchors that keep us grounded. We reflect on their indispensable role in providing solace and guidance, especially when faced with critical decisions regarding our children's well-being. You'll hear how faith can be a source of comfort, assuring us that we're part of a larger plan and never alone in our struggles. Remember, reaching out is a sign of strength, and Charlotte's Hope Foundation is here to extend a helping hand. By sharing our stories and connecting through this platform, we pave the way for hope and support to flourish in the lives of those who need it most.

Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
Email: Contact@CharlottesHopeFoundation.org
Facebook: Charlotte's Hope Foundation
Instagram: CharlottesHopeFoundationInc