Frustrating reality medicine
That she recovered
The emotions and the descriptions were real
Very interesting and frustrating at times.
Susannah Cahalan gives readers a very thorough description of her mental breakdown (caused by an extremely rare and hard-to-diagnose disease) and its aftermath. It's quite interesting to experience something like that in the words of the patient herself. I'd recommend the book for sure.
I had a similar reaction to medication several years ago. I could relate to some of her experiences.
I have never read a book like this before.
The main character, by far.
I felt so bad for the character; that she unfortunately had to experience this traumatic event. However, I am thankful she wrote this book to share her story.
She was very brave for sharing her story. Thank you.
Audible obsessed lifelong learner.
What a terrifying read on how fragile our grasp on sanity is. The author could have easily become a causality to our broken health care system but through luck and shear determination by her loved ones the right treatment was found to restore her quality of life.
Audible listener who's grateful for a long commute!
I'd heard of Susannah Cahalan's "Brain on Fire" (2011), but I'd also heard Cahalan's a New York Post reporter. "A tabloid reporter?" I thought. "A writer from the rag famous for headlines like 'Headless Body found in Topless Bar' (April 15, 1983) and 'Weiner's Rise and Fall' (June 17, 2011)?" Clever headlines, sure - but aren't all tabloid writers as nutty as their ledes? "Maybe the job did her in," I thought, mentally dismissing the book.
My newspaper snobbery almost made me miss a very well written, insightful book based on sound, peer reviewed and published scientific research. In her mid-20's, working a dream job in New York City with a new boyfriend, Cahalan developed Anti-NMDA- (N-methyl D-aspartate) receptor autoimmune encephalitis, At the time - and probably still - people who develop signs and symptoms of that disease are diagnosed with psychosis of unknown origin, or schizo-affective disorder. The only really unexplainable symptom is seizures - others, such as abnormally high blood pressure, can be misdiagnosed as an concurrent, but unrelated problem.
Cahalan was lucky - she has a well educated family, and her bitterly divorced parents set aside their animosity to aggressively advocate and care for her. In fact, Cahalan's parents' new spouses were admirably supportive, despite Cahalan's paranoia - which had her saying particularly hurtful things to one and all. Even with parents and a boyfriend convinced Cahalan had more than "just a mental illness", pinpointing the cause was long and arduous - and almost didn't happen in time to prevent irreversible physical and mental problems. The treatment was an arduous course of steroids and intravenous immunoglobulins and plasmapheresis. Cahalan's care ended up costing her insurer over $1 mil, although if she had been properly diagnosed to begin with, the bill would have been 25% to 50% less.
Cahalan did something that was incredibly brave: she carefully researched and wrote about a situation that not only almost killed her, but also had her acting in ways that she later found were incredibly embarrassing. The most courageous admissions were about the hallucinations she knows she had - but are such vivid memories, she still half believes they were true.
Audible, I blame you for making me a newspaper snob in the first place. (That happens when the monthly subscription includes a 48 to 52 minute every weekday New York Times Audible Digest; your drive is about an hour; and the NY Times writing's usually pretty good.) Audible, I also thank you for knocking me off my literary high horse to find a writer worth the listen. I'm not going to start reading the New York Post, but I will look for other medical/scientific books by Cahalan. And, yeah, maybe I'll actually read a Post article along with an especially "punny" headline.
[If this review helped, please press YES. Thanks!]
Maybe it's because of Susannah Cahalan's expertise in writing or Heather Henderson's wonderful narration style, whatever the reason, this audio book was amazing. This book opened my eyes to new worlds for the mentally disabled. It allowed me to have hope for those who seem hopeless. My favorite aspect of this book was that Cahalan somehow managed to make me feel what she felt--Is she crazy? Will she make a 100% recovery? Will she have a reoccurrence of encephalitis?
I listen to and have recently started to write reviews. I've found the reviews have helped me to select books.
Susannah Cahalan worked as a newspaper reporter who had been experiencing symptoms that mimicked mental illness. She was in the midst of a psychotic episode. Susannah was paranoid, delusional, hearing voices, having hallucinations and thinking that people were talking about her. She had no prelude to this illness. Susannah woke up one morning and out of no where, exhibited highly irrational behavior. Her biggest fear was that she would be placed in a nursing home or even worse, a psychiatric facility.
Susannah would have combative episodes and awoke to find herself strapped to a bed unable to move or speak and most alarming, she was being watched by a guard. She realized that she was in a hospital but had no memory why.
Susannah would go in and out of these symptoms without any recollection of the events. Susannah, friends, boyfriend of only 3 months, and family were, at this time, quite distraught. Susannah was given anti-pyschotic medications to try and help her to remain stable. Her personality before had been vibrant, very social, her working skills were excellent and she had been living in an apartment in New York City on her own. However, when the illness reached its apex, Susannah became angry, avoided people and friends, could no longer concentrate, had to leave her job and move in with her mother and step-father. Her mother realized that Susannah needed to be hospialtlized.
There were many doctors who attempted to help Susannah. To everyone's dismay each doctor would discontinue seeing her and send another doctor to evaluate Susannah, hoping to find the correct diagnosis. It became apparent the doctor's zeroed in or her psychotic episodes and concluded that Susannah needed psychiatric intervention.
Miraculously, it seemed, after spending 30 days in a hospital, with no definite diagnosis, there was a doctor who had knowledge of why Susannah's brain was, "on fire." The doctor performed more testing and the PET scan, which illuminated the brain with such clarity, showed that Susannah had fluid on her brain.
There are at least 100 autoimmune diseases and Susannah also had an autoimmune disease that had only recently been discovered. Unlike other autoimmune diseases, Susannah could possibly have a complete reversal or at least 90%. Luckily, Susannah received treatment before any severe damage had occurred to her brain.
Susannah left the hospital and had out patient treatments for the IV medication termed, IVG. Her other medications could be taken at home.
Susannah wrote her memoir to tell reader's about her struggles and how she survived. The book was well written and proved to be a great listen. Heather Henson did an excellent job of narration. She did the voices well and emulated the emotions of all the character's with recognition and feeling. I would recommend to other's to purchase this book.
The narration helps to personalize the story.
This was a riveting account of a mysterious onset illness and the fight for a correct diagnosis. A true story of mystery, disease, confusion, fear and victory all rolled into one. It leaves one wondering how often patients are misdiagnosed.
This was a fascinating story and also scary. This is something that can happen to anyone. I think about all the people that may be in mental institutions when they actually have a medical condition. The story was well written and keeps your interest while providing a lot of medical detail, but it is not over your head - it is understandable.
Among top 20
Could not put this book down. An amazing story and truly terrifying