So many books, so little time
The skilled reading of this book made it very hard to stop listening. What an experience this young woman lived through. If you like medical mysteries, this is a terrific (literally terrifying) tale.
Frustrating reality medicine
That she recovered
The emotions and the descriptions were real
Very interesting and frustrating at times.
Susannah Cahalan gives readers a very thorough description of her mental breakdown (caused by an extremely rare and hard-to-diagnose disease) and its aftermath. It's quite interesting to experience something like that in the words of the patient herself. I'd recommend the book for sure.
I had a similar reaction to medication several years ago. I could relate to some of her experiences.
I have never read a book like this before.
The main character, by far.
I felt so bad for the character; that she unfortunately had to experience this traumatic event. However, I am thankful she wrote this book to share her story.
She was very brave for sharing her story. Thank you.
Audible obsessed lifelong learner.
What a terrifying read on how fragile our grasp on sanity is. The author could have easily become a causality to our broken health care system but through luck and shear determination by her loved ones the right treatment was found to restore her quality of life.
The narration helps to personalize the story.
This was a riveting account of a mysterious onset illness and the fight for a correct diagnosis. A true story of mystery, disease, confusion, fear and victory all rolled into one. It leaves one wondering how often patients are misdiagnosed.
Maybe it's because of Susannah Cahalan's expertise in writing or Heather Henderson's wonderful narration style, whatever the reason, this audio book was amazing. This book opened my eyes to new worlds for the mentally disabled. It allowed me to have hope for those who seem hopeless. My favorite aspect of this book was that Cahalan somehow managed to make me feel what she felt--Is she crazy? Will she make a 100% recovery? Will she have a reoccurrence of encephalitis?
The narrator is great. She makes the book better. The content is amazing. In the beginning of the story, I did find it hard to sympathize with the author's plight because she came off as very annoying. However, this annoyance faded as the story progressed.
Something that is overlooked in the main premise of this story is how important medical advocacy is. The parents of the author are the reason she got the care she did. The story really is amazing. At the same time, it is sad to think of how many others were erroneously diagnosed with mental illness that was actually caused by something else (no spoilers from me).
This book is a nice complement to "My Stoke of Insight." I do wish the author had narrated. I'm not sure why she didn't...but perhaps it would have been poor narration. The narrator adds to the story and makes it a 5 star book.
Addicted to Audible!
As a Nurse I always tell my patients, get a second opinion or a third or a fourth and always have an advocate with you when you go to a hospital. This book kept my interest and I was thankful that Susannah had parents that were amazing advocates for her and kept getting those opinions till they found Dr. Najar who saved her life! What a scary experience she had. She is a very lucky woman!
I listen to and have recently started to write reviews. I've found the reviews have helped me to select books.
Susannah Cahalan worked as a newspaper reporter who had been experiencing symptoms that mimicked mental illness. She was in the midst of a psychotic episode. Susannah was paranoid, delusional, hearing voices, having hallucinations and thinking that people were talking about her. She had no prelude to this illness. Susannah woke up one morning and out of no where, exhibited highly irrational behavior. Her biggest fear was that she would be placed in a nursing home or even worse, a psychiatric facility.
Susannah would have combative episodes and awoke to find herself strapped to a bed unable to move or speak and most alarming, she was being watched by a guard. She realized that she was in a hospital but had no memory why.
Susannah would go in and out of these symptoms without any recollection of the events. Susannah, friends, boyfriend of only 3 months, and family were, at this time, quite distraught. Susannah was given anti-pyschotic medications to try and help her to remain stable. Her personality before had been vibrant, very social, her working skills were excellent and she had been living in an apartment in New York City on her own. However, when the illness reached its apex, Susannah became angry, avoided people and friends, could no longer concentrate, had to leave her job and move in with her mother and step-father. Her mother realized that Susannah needed to be hospialtlized.
There were many doctors who attempted to help Susannah. To everyone's dismay each doctor would discontinue seeing her and send another doctor to evaluate Susannah, hoping to find the correct diagnosis. It became apparent the doctor's zeroed in or her psychotic episodes and concluded that Susannah needed psychiatric intervention.
Miraculously, it seemed, after spending 30 days in a hospital, with no definite diagnosis, there was a doctor who had knowledge of why Susannah's brain was, "on fire." The doctor performed more testing and the PET scan, which illuminated the brain with such clarity, showed that Susannah had fluid on her brain.
There are at least 100 autoimmune diseases and Susannah also had an autoimmune disease that had only recently been discovered. Unlike other autoimmune diseases, Susannah could possibly have a complete reversal or at least 90%. Luckily, Susannah received treatment before any severe damage had occurred to her brain.
Susannah left the hospital and had out patient treatments for the IV medication termed, IVG. Her other medications could be taken at home.
Susannah wrote her memoir to tell reader's about her struggles and how she survived. The book was well written and proved to be a great listen. Heather Henson did an excellent job of narration. She did the voices well and emulated the emotions of all the character's with recognition and feeling. I would recommend to other's to purchase this book.