Crucial information, in three dimensions, for every doctor. Essential insights for every parent. Hope for every person.
This was an amazing story of misdiagnosis and a mother who would not give up.
This story amazed me. As a nurse I deal with diagnosis on a daily basis. This book rekindled a determination to both advocate and be an advocate for those who will not or cannot advocate for themselves.
Doctors are human and limited. Medicine is driven by many factors including knowledge, experience, opinion, money and government regulation. A mothers instinct and unending determination both saved and changed Sammy's life. Praise the Lord that this mother determined to share her experience for the sake of others. It has already made a difference.
I work with PANDAS patients, and it is still in its infancy. Beth Maloney both shares and educates her readers,which makes learning easier. Thank you for keeping your promise to God. He so loves us. Theta Ciriello, Infusion Nurse
This book tells the story of Sammy and how his mother perservered in finding answers when the doctors wouldn't listen. Not only is it important in the aspect of increasing awareness that OCD symptoms can be caused by strep, it also illustrates the importance of not just accepting a medical professional's opinion as sacrosanct. As this story illustrates, it is okay to question the opinion of your doctor and to get second, third and fourth opinions and to do your own research and draw informed conclusions. Not only is it okay to do that, but sometimes it can save your life. This is an important book to increase awareness of how what some perceive as a simple infection can affect a person's life.
I don't know if I would listen to this one again, because it was a little sad and stressful, but it was a wonderful, insightful, intelligent look inside the life of a family with a boy struggling with PANDAs. It is extremely well written and read and should do a great job helping to create empathy and support for families struggling with this issue. And if I run into another family dealing with this in the future, I'll pull it out and listen again.
I really felt like the author was telling her own story.
I didn't listen all in one sitting, but I listened as quickly as I could. It was a riveting story.
A very good and important work.
The author's honesty and courage to share her and her son's story.
I have a daughter who struggled with a chronic debilitating illness, not once, but twice - two different illnesses. Local doctors gave up on her and referred us to psychologists and psychiatrists each leading no closer to her getting any better. I too fired and hired countless doctors, also traveling hundreds of miles away from home seeking answers until finally the answers came. I commend Beth Alison Maloney for sharing her and her son's heart breaking and triumphant journey with all mothers (and I suppose many fathers) giving them hope when the medical community seems to present none. It is beautifully written and I was unable to stop the recording until I had completed the entire book. Parents, never, NEVER give up on your child. You are his or her greatest ally!
Listen on dog walks, commutes and around the house. Welcome virtually any genre but southern fiction holds a special place in my heart.
My experience with OCD is zero. In fact, my experience with mental illness is extremely limited. With this open mind, I delved into Ms. Maloney's harrowing account of her son's sudden onset of OCD and her equally harrowing navigation of the healthcare system as she searched desperately for answers. Although there is much belly-aching by medical professionals over the number of patients who deem themselves healthcare experts after an afternoon on the Internet, this book proves the immense value of research and perseverance. I was impressed by Ms. Maloney's unwillingness to accept the close-minded opinions of some doctors and her insistence on second, third, fourth and fifth opinions until she found a diagnosis that made sense and a treatment plan that worked for her son. Kudos to her bravery and stubbornness! I have no idea when I might find myself in such a quandary but I only hope to have the drive exhibited by this author to break down those medical brick walls.
Could not believe what this mother went through. You think you have it hard. Read this story and you will thank God you have healthy children.