I am a scientist, and I enjoy reading books about science that would also appeal to the general public. This book is wonderful: I really enjoy the interweaving of science with the lives of the people in Henrietta's family. It is so interesting to learn about the history of the family, as well as about all the things that these cells have been used for, and all the things they have been involved in.
I am an avid eclectic reader.
This is a well-written non-fiction book, that provides back ground information about unfair treatment of minorities by medical research. Cassandra Campbell and Bahni Turpin did great job with the narration of the book. The story of Henrietta Lacks and her family is interesting and the discovery and care of the Hi La cells. One major item about the family is the lack of education played a major role in their understanding and ability to control the situation. The book accomplishes its goal of promoting proper documentation of biological tissue research. It raises the question of ownership of our own tissues and whether or not we have proprietary rights to our bodies in situ or in vitro. This question needs to be answered NOW not in the future. The other teaching of the book was how important education is to each individual. This is an absolute must read book for everyone on this planet.
The beginning of this book was interesting and kept me listening. I learned some interesting information about cell research. But sadly by the time I began listening to Part 2, my interest was waning. The trials and tribulations of the Lacks children (mainly as adults) took over the story and became tedious. I think Skloot became too involved with the family, thus losing her objectivity and was unable to write an unbiased story. I finished the book but was disappointed with the final 1/4 of the book.
The narrators did a fine job and their delivery helped me make it to the end of the book.
This is a necessary book - aside from informing us about what seems today like the the dark ages of cancer research and the reported unfair treatment of minorities by the medical community in the era of Henrietta Lacks, it's time we all became more enlightened as to the fate of our body products once we part with them in a doctor's office, lab or hospital. This book raises important issues as to the space required for storage of all discarded tissue, which is unlike printed material that can be converted to digital format.
As an historical novel there are bound to be characters that are not "likable" nor relatable in the usual fictional sense. This family was troubled in many ways, in addition to the implied racial implications, the possible malpractice issues regarding the HeLa cells, and losing any financial stake in the success of the HeLa cell line. The family came to Baltimore to be part of the then growing steel industry. They were originally from a bare bones town in Virginia, having farmed their own tobacco crops after indirectly inheriting the property after being emancipated from slave status. There were some hard workers amongst the marginal characters, but basically this was a hard-strapping family who had to make do in order to survive. And several of them fell by the wayside to crime and mental dysfunction.
The book is well-written, even with the frequent disjunctions in time periods. It can be difficult to follow the genealogy and plethora of major and minor characters, and the myriad mentions of various studies. But all that is mere technicality.
The book accomplishes its goal of promoting proper documentation of, and credit for - financial or otherwise - biological tissues that are saved and used for research. It raise the question of ownership of our own tissues, and whether or not we have proprietary rights to our own bodies, in situ or in vitro.
There is no Frigate like a Book To take us Lands away Nor any Coursers like a Page Of prancing Poetry – Emily Dickinson
I can really appreciate the depth of the research that went into this book. Since the book is structured around the chronology of Rebekka Skloot's research, it becomes apparent that it was pretty much her whole life for many years. I found the weaving of human interest stories about Henrietta and her family along with interesting scientific facts to be an engaging technique. It's interesting that several reviews I read fault her for NOT being scientific enough and for including her own story into the book. To me, those parts made all the science palatable and the book very readable!
One thing that struck me is the depth of the ignorance of all of the Lacks. They were underprivileged and uneducated mostly. In addition, there had been a lot of inbreeding in their family, so their were other issues that hampered their development. They mostly had so little education that even basic scientific explanations swished right by them and they relied more on some kind of magical thinking or myth. One myth was how Johns Hopkins medical center was snatching black people off the street to do medical research on them. In fact the author shows how Johns Hopkins was founded on the principal of helping blacks and any indigent people! There are definitely morally ambiguous decisions that were made at Johns Hopkins, but it didn't involve snatching blacks off the street! I like the way the author then went back in history to explain how this type of thinking originated. She said black oral history is filled with stories of "night doctors" who did kidnap black people and use them for research. Evidently slave owners used prey on blacks' belief that ghosts caused disease and death and their fear of these "night doctors" by dressing up as a ghost in a white sheet and scaring them into thinking that they were going to be taken away. This was a technique to keep the slaves from running away or meeting together, evidently. And, most interesting, is that these white sheeted costumes were the precursor of the Ku Klux Klan robes.
In the end, I found the book easy to read and follow, but I did get a little tired of it. I'm really only marginally interested in HELA cells, so this was a lot to read. It's a tribute to the author that she could make it as interesting as she did!
This is an important story. It is thoroughly investigated and well written. BUT, it is not s good audo book b/c of all the detail. Do yourself a favor -- clear your schedile, and settle in w/ a good old fashioned HARDCOPY.
Heard about this book on NPR's 'Fresh Air.' The story of Henrietta's 'HeLa' cells are mind blowing, the way they have impacted our lives in so many ways. This story really becomes the story of Henrietta's family, who are unfortunately extremely naive in terms of the impact her cells have had on medical history. One feels very badly for them, and frankly, whenever I have to sign a concent form in a Dr.'s office, I'm super sensitive to any verbiage stating my cells can be used for commercial purposes. The bummer about this is the amount of (boring) detail the author gets into tracing the legacy and history of cell culturing in our society. Great research, but at times reads like a science book.
Hey Audible, don't raise prices and I promise to buy lots more books.
Voted the Best of 2010 in Science and Technology, I am so glad this book got the recognition it so richly deserved. The author is a science/medical writer. But, I think, a mistake was made in the category in which it was placed. Were it in the category of nonfiction, I think more folks would think about reading it. The science part of the book is wonderful and approachable by anyone. But this is not a science or technology book per se nor, do I think, is science the best part of the book. It is a book more about ethics and the law. It is a book, I believe, mostly about our humanity and in that regard, I cannot find a better book in this year or in many others before it. The book is a superbly written and exquisitely narrated.
A Heartbreaking story that details the illogical justification used by scientists and the market establishment they created to reason away that an individual's biological material is not their own or something they can uniquely own and patent or trademark but instead can only be patented and trademarked by a scientist or corporation (manufactured individual). This woman from America's racial and economic underclass's unique and special biological cells pioneered science and are now sold as the property of a corporation. She died in poverty and her progenitors and spouse struggled and suffered greatly as the medical and science establishment exploited their ignorance while making huge advancements and wealth with the immortal cells of this poor woman without even giving proper public credit or respect.