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What Doesn't Kill You
- A Life with Chronic Illness - Lessons from a Body in Revolt
- Narrado por: Tessa Miller
- Duración: 9 h y 12 m
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Resumen del Editor
A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
Tessa Miller was an ambitious 20-something writer in New York City when, on a random fall day, her stomach began to seize up. At first, she tried to push through the searing pain, taking time off work and staying home, glued to the toilet. But when it became glaringly apparent something was wrong, Miller gave in to her family's requests and went to the hospital - and thus started a years-long personal nightmare that included procedures, misdiagnoses, and life-threatening infections. Once Miller was finally correctly diagnosed with Crohn's disease, she had yet another new battle to face: accepting that she will, in truth, never get better.
Today, three in five adults in the United States suffer from a chronic ailment, whether the illness is endometriosis, IBD, IBS, Crohn's, ulcerative colitis, asthma, depression, anxiety, diabetes, or any other chronic ailment. However, despite the prevalence of these illnesses and the impact they have on just about everyone - whether the sufferer is a colleague, a loved one, or you personally - there remains an air of shame and isolation around the topic. Millions endure these diseases alone, not only physically but also emotionally, balancing the stress of relationships and work amidst the ever-looming threat of health complications.
Moving from Miller's maddening yet all too relatable experience into a deeper look at how the medical community handles chronic illness, What Doesn't Kill You exposes the realities of what it means to accept a lifetime diagnosis, pushing past the good, the bad, and the ugly to offer wisdom and solidarity for those trying to make sense of it all.
This audiobook includes a PDF of resources from the appendix of the book.
PLEASE NOTE: When you purchase this title, the accompanying PDF will be available in your Audible Library along with the audio.
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Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.
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More an self biography
- De Jaime Murillo en 04-27-24
De: Helen Russell
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The New Normal
- A Roadmap to Resilience in the Pandemic Era
- De: Jennifer Ashton
- Narrado por: Jennifer Ashton
- Duración: 8 h y 42 m
- Versión completa
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From Dr. Jennifer Ashton comes a doctor’s guide to finding resilience in the time of COVID, while staying safe and sane in a rapidly changing world. The New Normal is a holistic road map through the ongoing struggles of the pandemic, providing the guidance you need to navigate this unsettling time and take charge of your future well-being.
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Live Each Day Alive
- De Barbara A. Badalewski en 06-02-23
De: Jennifer Ashton
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The Spectrum of Hope
- An Optimistic and New Approach to Alzheimer's Disease and Other Dementias
- De: Gayatri Devi MD
- Narrado por: Wendy Tremont King
- Duración: 12 h y 41 m
- Versión completa
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Historia
Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the five million Americans who suffer from Alzheimer's disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who's been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer's by defining it as a spectrum disorder - like autism, Alzheimer's is a disease that affects different people differently.
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Aging with Grace
- De Lisa F en 05-19-21
De: Gayatri Devi MD
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Changing the Way We Die
- Compassionate End-of-Life Care and the Hospice Movement
- De: Sheila Himmel, Fran Smith
- Narrado por: Coleen Marlo
- Duración: 6 h y 49 m
- Versión completa
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There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
- De Debra S. Long en 06-16-18
De: Sheila Himmel, y otros
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In Pain
- A Bioethicist’s Personal Struggle with Opioids
- De: Travis Rieder
- Narrado por: Travis Rieder
- Duración: 8 h y 56 m
- Versión completa
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A bioethicist’s eloquent and riveting memoir of opioid dependence and withdrawal - a harrowing personal reckoning and clarion call for change not only for government but medicine itself, revealing the lack of crucial resources and structures to handle this insidious nationwide epidemic.
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An essential read in a time of crisis
- De Kelly Heuer en 06-25-19
De: Travis Rieder
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A Bittersweet Season
- Caring for Our Aging Parents - And Ourselves
- De: Jane Gross
- Narrado por: Kate Reading
- Duración: 15 h y 35 m
- Versión completa
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In telling the intimate story of caring for her aged and ailing mother, Jane Gross offers indispensable, and often surprising, advice for the rapidly increasing number of adult children responsible for aging parents. Gross deftly weaves the specifics of her personal experience with a comprehensive resource for effectively managing the lives of one's own parents while keeping sanity and strength intact.
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Exceptional, thought-provoking, liberating!
- De Anne en 08-10-11
De: Jane Gross
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- De: Sallie Tisdale
- Narrado por: Gabra Zackman
- Duración: 7 h y 11 m
- Versión completa
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You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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I thought I had more time...
- De Alyssa en 09-09-19
De: Sallie Tisdale
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Peace, Love & Healing
- Bodymind Communication & the Path to Self-Healing: An Exploration
- De: Bernie S. Siegel
- Narrado por: Bernie S. Siegel
- Duración: 2 h y 56 m
- Versión completa
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A classic of patient empowerment, Peace, Love & Healing offered the revolutionary message that we have an innate ability to heal ourselves. Now proven by numerous scientific studies, the connection between our minds and our bodies has been increasingly accepted as fact throughout the mainstream medical community. In a new introduction, Dr. Bernie Siegel highlights current research on the relationships among consciousness, psychosocial factors, attitude, and immune function.
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horrible horrible
- De Honestly en 02-09-15
De: Bernie S. Siegel
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Mind Over Medicine
- Scientific Proof That You Can Heal Yourself
- De: Lissa Rankin M.D.
- Narrado por: Lissa Rankin M.D.
- Duración: 9 h y 26 m
- Versión completa
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Dr. Rankin discovered the health care she had been taught was missing something: a recognition of the body’s innate ability to self-repair. Using cases of spontaneous healing, Dr. Rankin shows how thoughts, feelings, and beliefs can alter the body’s physiology. She lays out the data proving that loneliness, pessimism, depression, fear, and anxiety damage the body, while intimate relationships, gratitude, meditation, sex, and authentic self-expression flip on the body’s self-healing processes.
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Blue Zones Meets The Placebo Effect
- De Jay en 06-29-13
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Confessions of a GP
- De: Benjamin Daniels
- Narrado por: Eamonn Riley
- Duración: 6 h y 1 m
- Versión completa
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Benjamin Daniels is angry. He is frustrated, confused, baffled and, quite frequently, very funny. He is also a GP. These are his confessions.A woman troubled by pornographic dreams about Tom Jones. An 80-year-old man who can't remember why he's come to see the doctor.
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Very enjoyable
- De PCF en 05-27-17
De: Benjamin Daniels
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How to Be Fine
- What We Learned by Living by the Rules of 50 Self-Help Books
- De: Jolenta Greenberg, Kristen Meinzer
- Narrado por: Jolenta Greenberg, Kristen Meinzer
- Duración: 4 h y 54 m
- Versión completa
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Narración:
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In each episode of their podcast By the Book, Jolenta Greenberg and Kristen Meinzer take a deep dive into a different self-help book, following its specific instructions, rules, and advice to the letter. From diet and productivity to decorating to social interactions, they try it all, record themselves along the way, then share what they’ve learned with their devoted and growing audience of fans who tune in.
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Disappointed
- De doughswan en 10-23-20
De: Jolenta Greenberg, y otros
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Nobody Knows the Trouble I’ve Seen
- The Emotional Lives of Black Women
- De: Inger Burnett-Zeigler
- Narrado por: Adenrele Ojo
- Duración: 7 h y 47 m
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Black women are beautiful, intelligent, and capable - but mostly they embrace strong. Esteemed clinical psychologist Dr. Inger Burnett-Zeigler praises the strength of women while exploring how trauma and adversity have led to deep emotional pain and shaped how they walk through the world.
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Amazing!
- De charlene lindsey en 09-08-21
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Women Who Think Too Much
- How to Break Free of Overthinking and Reclaim Your Life
- De: Susan Nolen-Hoeksema
- Narrado por: Sheryl Bernstein
- Duración: 2 h y 58 m
- Versión resumida
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General
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Narración:
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Historia
It's not a surprise that our fast-paced, overly analytical culture is pushing people - especially women - to spend countless hours thinking about negative ideas, feelings, and experiences. Renowned psychologist Dr. Susan Nolen-Hoeksema calls this "overthinking". Her groundbreaking research shows that an increasing number of women - more than half of those in her extensive study - are doing it too much and too often, hindering their ability to lead a satisfying life.
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Generic tools for overcoming overthinking
- De letlet en 01-09-19
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Alzheimer’s Through the Stages: A Caregiver’s Guide
- What to Expect, What to Say,What to Do
- De: Mary Moller MSW CAS
- Narrado por: Heidi Rew
- Duración: 5 h y 20 m
- Versión completa
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General
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Narración:
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Alzheimers books should help everyone involved through this incredibly difficult time. That’s why Alzheimer’s Through the Stages shows you what you can do for your loved one - and yourself - every step of the way. This book’s detailed descriptions of all seven stages of the disease are both helpful and comforting. With each section divided into three parts - what to expect, what to say, and what to do - this is one of the easiest to use Alzheimers books for caregivers.
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Peaceful narration of wonderfully helpful book
- De Too_much_shopping en 02-10-23
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Black Man in a White Coat
- A Doctor's Reflections on Race and Medicine
- De: Damon Tweedy M.D.
- Narrado por: Corey Allen
- Duración: 8 h y 44 m
- Versión completa
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One doctor's passionate and profound memoir of his experience grappling with racial identity, bias, and the unique health problems of Black Americans. When Damon Tweedy first enters the halls of Duke University Medical School on a full scholarship, he envisions a bright future where his segregated, working-class background will become largely irrelevant. Instead he finds that he has joined a new world where race is front and center.
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Absolutely eye opening!
- De Kelene en 02-23-16
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- De: Angela Garbes
- Narrado por: Roxana Ortega, Angela Garbes
- Duración: 7 h
- Versión completa
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What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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Microchimerism - interesting at first, then profoundly healing
- De Emily Virgil en 09-10-18
De: Angela Garbes
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Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.
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A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.
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Humbling. Heart-Opening. Disturbing.
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The Lady's Handbook for Her Mysterious Illness
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In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.
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💯 a valuable use of your money AND time. 💯
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How to Be Sick (Second Edition)
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In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations - a life that was vastly different from the one they’d thought they’d have together - Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy.
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Essential read for anyone sick/in pain
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Incurable Optimist
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Perfect for listeners moved by Between Two Kingdoms, this life-affirming memoir of a young woman's sudden autoimmune kidney failure reveals a resilient journey of chronic illness, unfailing love, and moving forward with joy.
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Incredible, inspirational read!
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The Deep Places
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In the summer of 2015, Ross Douthat was moving his family, with two young daughters and a pregnant wife, from Washington, DC, to a sprawling farmhouse in a picturesque Connecticut town when he acquired a mysterious and devastating sickness. It left him sleepless, crippled, wracked with pain - a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which, according to CDC definitions, does not actually exist.
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Excellent!!
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Surviving and Thriving with an Invisible Chronic Illness
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Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.
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Great Reference Guide!
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Humbling. Heart-Opening. Disturbing.
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In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.
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In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations - a life that was vastly different from the one they’d thought they’d have together - Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy.
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When Chronic Pain & Illness Take Everything Away
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Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?
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When chronic pain and illness take everything away
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Outsmart Your Pain
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Pain can be a big, unwieldy box that we struggle to carry all day. But what if we could put down this box, unpack it, and tackle the contents one by one? Outsmart Your Pain is Dr. Christiane Wolf's radically clear, evidence-based guide to relieving chronic pain with mindfulness, complete with 20 easy guided meditations and self-compassion practices.
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This book has helped me so much!
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How to Live Well with Chronic Pain and Illness
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Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help listeners make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness.
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For those with disability and not
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Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references.
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Sitting Pretty
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Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.
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AMPLIFY this type of constructive, imaginative, and uplifting voice!!
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Code Gray
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In the tradition of books by such bestselling physician-authors as Atul Gawande, Siddhartha Mukherjee, and Danielle Ofri, this beautifully written memoir by an emergency room doctor takes place during one of his routine shifts at an urban ER. Intimately narrated as it follows the experiences of real patients, it is filled with fascinating, adrenaline-pumping scenes of rescues and deaths, and the critical, often excruciating follow-through in caring for the patients’ families.
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Disability Visibility: First-Person Stories from the Twenty-First Century
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One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
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Missing stories
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The Way Out
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Alan Gordon, a psychotherapist and the founder of the Pain Psychology Center in Los Angeles, was in grad school when he started experiencing chronic pain and it completely derailed his life. He saw multiple doctors and received many diagnoses, but none of the medical treatments helped. Frustrated with conventional pain management, he developed Pain Reprocessing Therapy (PRT), a mind-body protocol that eliminated his own chronic pain and has transformed the lives of thousands of his patients.
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An Amazing Book
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De: Alan Gordon, y otros
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Normal Sucks
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Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.
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Beautiful
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Autism in Heels
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Historia
This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.
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Somewhat relatable but not really.
- De M Bond en 02-26-23
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When the Body Says No
- The Cost of Hidden Stress
- De: Gabor Maté MD
- Narrado por: Daniel Maté
- Duración: 11 h y 48 m
- Versión completa
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Historia
In this accessible and groundbreaking book - filled with the moving stories of real people medical doctor and best-selling author Gabor Maté shows that emotion and psychological stress play a powerful role in the onset of chronic illness, including breast cancer, prostate cancer, multiple sclerosis and many others, even Alzheimer's disease.
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A must read for anyone, ill or not
- De herozero en 09-28-21
De: Gabor Maté MD
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The Premonition
- A Pandemic Story
- De: Michael Lewis
- Narrado por: Adenrele Ojo
- Duración: 11 h y 26 m
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For those who could read between the lines, the censored news out of China was terrifying. But the president insisted there was nothing to worry about. Fortunately, we are still a nation of skeptics. Fortunately, there are those among us who study pandemics and are willing to look unflinchingly at worst-case scenarios. Michael Lewis’ taut and brilliant nonfiction thriller pits a band of medical visionaries against the wall of ignorance that was the official response of the Trump administration to the outbreak of COVID-19.
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Why not Michael Lewis?
- De Brian en 05-04-21
De: Michael Lewis
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- Kieran Higgins
- 03-14-23
Wonderful Book
I have been dealing with a chronic illness which has brought me to my knees for the past four year’s.Multiple surgeries,doctors and medications with life changing side effects.
This book gave me some peace. I so enjoyed listening to it, I could identify with everything the author talked about. I realize how lucky I am to have a wonderful supportive family and friends that are always there for me.
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- Thomas A. Siewert
- 11-07-22
Glad I don't have Crohn's disease
This book consists of two parts. First there is the memoir, which is well-written and enlightening in terms of its depiction of a very nasty chronic illness and its complications. I really learned to appreciate the difficult life of dealing with Crohn's, and, having listened to this, I have greater compassion towards people with this and similar illnesses. I have chronic illness as well, but it's nowhere near as challenging. Still, there was much I could relate to. Of course, if I did have Crohn's and since I've mostly not had insurance in my life, I likely wouldn't be writing this now.
The second part of the book is the journalistic part where the author basically explains everything you need to know when living with such an illness, from insurance info, to relating to friends and family, to expectations of a good doctor, to even what to expect sexually, and more. It's very complete and a great reference, though I think the good doctor part has pretty high expectations, not realizable where I live. This second aspect of the book seems to take up most of the listening time, so that's something to be aware of going in. Seems like it could have been a second book. Definitely recommended.
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- Bessie Mae
- 10-07-23
Excellent Illness Memoir
This book is a powerful combination of personal narrative, commentary on the nightmare of the American medical and insurance systems, and well-informed acknowledgment of the unequal ways chronic illness falls on different bodies. The whole thing is terrifying and tenderly written.
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- Sheri
- 02-16-21
Enlightening, funny, emotional. Like listening to a friend.
This book contains enough personal context to read like a novel, but as much information as a self help book. She reminds us of the absolute grit living with chronic illness involves, while making you laugh and learn to be better. I couldn’t put it down. I appreciated her inclusive language and recognition of systemic racism, classism, and sexism as well. Thank you for this book Tessa Miller!
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esto le resultó útil a 6 personas
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- Mother of Chickens
- 12-25-21
living with crohn’s disease
Great job, Tessa! Tessa provides a touching, intimate, and at time bold accounting of her experience with crohn’s disease. I enjoyed and appreciated the opportunity to learn what living with crohn’s is like. as a care taker of loved ones wrestling with a different form of chronic disease (tick-borne diseases), i identified with many of the themes Tessa described, but felt at times Tessa might have tried to generalize too much based on her personal experience. Tessa suffers from a disease that conventional medicine acknowledges — at least enough to put a name on the group of symptoms. The fact that there are ‘medicines’ that hold some promise for managing crohn’s results in Tessa dismissing non conventional therapies — including whole foods based nutrient-dense diet (e.g. paleo) supported by the functional medicine community to optimally support the immune system when no other magic pill/medication is available. Such chronic illnesses (e.g., Lyme) are not acknowledged or offered effective conventional treatment to manage conditions. Tessa alluded appropriately to gaslighting — when doctors (and others) dismiss your reality and infer that it’s all in your head. I recommend this book to anyone who wants to understand how hard it is to live with crohn’s disease — an important segment of the chronic community. Everyone is similar but different. Every person with the same disease is similar but different. Every person with a different chronic illness is similar but even more different. Thank-you for the book Tessa.
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- Caro;ine
- 05-03-21
READ THE BOOK
I have never felt more heard, seen, not alone valued, and understood in my entire life. Living with chronic illness is hard living with a family who is not chronically ill doesn’t make it easier. Tessa outlines everything that I feel every day and have felt throughout my whole life anymore. She makes me feel as though I am not alone and as though she’s reading this book, we’re chatting over coffee, and like she thoroughly gets it because she does. She lives what I live every day. It’s so nice to know that I can give this book to my friends and my family, and they can listen to it and understand more than I’d be able to put into words myself. Well, she was saying it in a much more excellent way than I probably would. It was beautifully written, beautifully spoken, and beautifully read. I wish I could give this more stars.
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- Josephine Casteel
- 01-27-23
Validation
Thank you for sharing your story, I somehow feel understood… maybe it’s just for me right now.
I cried a lot listening to your story so much I could feel and relate to. I will continue to hope that there will be more understanding of chronic illness, not just from the medical community but also from family and friends…. Maybe one day they will believe. Thank you again for your courage to share Tessa . 💕
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- Dana A.
- 08-20-22
thank you!
I don't have the words. all I have is my gratitude to give. Thank you for being my voice ❤️
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- Liv
- 12-24-22
Relatable and profound
I loved her story and related to it so much. I have the kind of “invisible” (for the moment) crohn’s that causes me a lot of pain, money, sleep, shame, and worry, but that other people can’t usually see. It was so meaningful for me to hear this experience reflected. The way she wrote about grieving your body as a young person who has just learned that you’ll never get better really helped me understand my experience. I’m lucky in many ways, and that has sometimes made me feel guilty about all the ways I’m angry at my diagnosis. And to everyone saying she “didn’t need to get political” about the American healthcare system . . . grow up, and listen.
Thank you for this book!
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- LZ
- 02-14-21
Excellent book
I can't recommend this book enough for people facing chronic illness and their caregivers. It contains a lot of helpful information while also giving voice to feelings that have been hard to put into words for many of us. I walked away with lots of notes, a new perspective, and feeling part of a community. Thank you for sharing your story Tessa Miller.
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esto le resultó útil a 8 personas